WHAT IS PROGE­RIA?

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Hutchinson-Gil­ford proge­ria syn­drome, or proge­ria, is an ex­tremely rare ge­netic condition, af­fect­ing one in ev­ery four mil­lion births world­wide.

It’s caused by a faulty gene, which pro­duces an ab­nor­mal pro­tein that trig­gers rapid age­ing.

It af­fects both sexes, and the av­er­age life ex­pectancy is 13.

Most children ap­pear healthy when born, but tell-tale signs – in­clud­ing weight loss, large eyes, and beaked nose – ap­pear in the first year.

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