Thousands denied vital thyroid drug
THOUSANDS are being denied treatment for shattering thyroid illness because of a geographical lottery in NHS prescriptions.
Campaigners say they cannot get lifeboosting liothyronine because many area health bodies refuse to prescribe the drug.
Hypothyroid sufferers, mostly female, are forced to endure debilitating symptoms including chronic fatigue, weight gain and depression – unless they buy their own supply from overseas.
Public health officials began to avoid giving out liothyronine after manufacturer Advanz Pharma hiked the price.
In the past decade, Advanz Pharma raised the cost of a month’s supply from £4 to £248 – a 6,000 per cent increase.
The company and its financial backers were fined a total of £100million last week by fair trade watchdog the Competition and Markets Authority over the “excessive and unfair” prices.
Now The Thyroid Trust has published research claiming the drug – which patients say instantly makes them feel better – has been “unreasonably withheld” by 52 per cent of the area bodies running NHS services.
Secret
Trust director Lorraine Williams has demanded action to correct the “unfair and inconsistent” policies by the Clinical Commissioning Groups (CCGs).
CCGs are groups of GPs who commission the best services for patients.
Ms Williams said that although NHS guidelines say liothyronine should be made available for hypothyroid sufferers, the CCGs have widely different policies.
She said: “It has become this secret thing that many health commissioners try to stop patients having, and many doctors are afraid to prescribe it due to the cost.”
The trust discovered only 24 of 186 CCG policies it looked at appeared to be following the recommended prescription of liothyronine in full, and only 55 acted in line with national guidance.
It found 97 were not following the national guidance.
Calling for the manufacturer’s charges to be forced down, the trust added: “It is clear to us that if the price issue were resolved the issues of CCGs withholding treatment would disappear.”