STANLEY GIVES THUMBS-UP TO BREAKTHROUGH

STANLEY Brown gives the news that he might soon be on wonder drug Kuvan a big thumbs-up.

The six-year-old struggles to find any non-protein food he likes and, heartbreakingly, has told his parents Jessica and Matt: “I wish I didn’t have PKU!”

But delighted Jessica, 39, said yesterday: “We’re thrilled this drug will be made available to Stanley after such a long, long wait. We are so eager to get started with it and hope after this announcement things can move quickly.

“But we’re apprehensive that at some point in his life the drug will be withdrawn and feel terrible for those people that won’t be able to access it.”

Last year Jessica, of Halesowen, West Midlands, spoke of the stress of PKU dominating family life.

“We cannot eat out often and if we do we need to do extensive research. We also have to make sure he doesn’t eat his friends’ food or treats – which makes him feel especially different.”

Stanley has to avoid meats, nuts, fish, dairy products – and even some vegetables. Jessica, a teacher, added: “Kuvan would give him the freedom to enjoy food and take away a huge level of stress.”