Our little troop er will fight until the very end ...

CHRIS GARD: ‘We want to give him a bath at home, we want to sit on the sofa with him, sleep in the bed with him, we want to put him in a cot he’s never slept in. But we’re now being denied that. We had a meeting yesterday in which we were told we were going to discuss our options, and we’ve said we would like to take him home, and if that’s not possible a hospice. They said no to both, he has to die in that hospital.’

CONNIE YATES: ‘They said they couldn’t get transport to take us home, so we’ve offered to pay for that privately and they said that’s not an option.’

CHRIS: ‘I’m sure you’ve read in the media that they’ve come out and said, there is no rush to do all this, we’re working closely with the family to arrange his end-of-life care.’

CONNIE: ‘We have literally begged them today to give us this weekend.’

CHRIS: ‘Some of our family and friends can’t come. They can’t come before tomorrow. So the last time they saw Charlie will be the last time they see him.’

CONNIE: ‘And he is still so stable, that’s what’s so hard. He’s so stable.’

CHRIS: ‘You can see on our T-shirts, it says, “If he’s still fighting, we’re still fighting.” And he’s still fighting over there, believe me, he’s still fighting. He’s a little fighter, he’s a little trooper and he’s a soldier. He will fight to the very end, but we’re not allowed to fight for him any more.’

CONNIE: ‘The 4th of August, 2016, was the best day of our lives, the day that Charlie was born. The 30th of the sixth, 201 , is going to be the worst day of our lives. Charlie will die in Great Ormond Street Hospital. Thank you everyone for all your support.’