EDP Norfolk - - Inside -

When BBC Look East sto­ries get a big re­sponse on so­cial me­dia you know you have hit a nerve. A few weeks ago we led the pro­gramme with a re­port on ME, or Chronic Fa­tigue Syn­drome, and I tweeted about it. My twit­ter feed was alight for days and days af­ter­wards.

Ex­actly the same thing had hap­pened when I did an in­ter­view on ME a year ear­lier.

I think this shows two things: first, there are an aw­ful lot of peo­ple liv­ing with the ill­ness – ei­ther openly or be­hind closed doors. Sec­ond, there’s hardly any me­dia cov­er­age of it, so suf­fer­ers feel for­got­ten and mis­un­der­stood.

Ground­break­ing re­search is be­ing car­ried out into ME at the In­sti­tute of Food Re­search in Nor­wich, and the Sci­ence Park is to be­come an in­ter­na­tional cen­tre for stud­ies into the cause of the ill­ness. It’s also hop­ing to trial a can­cer drug which has been shown to help pa­tients with ME in Nor­way.

A lot of the re­search is be­ing crowd­funded by peo­ple with ME – some are un­able to get out of bed, but still fundraise on their lap­tops. They are work­ing so hard to find them­selves a cure. I so hope they get the an­swers they’re look­ing for.

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