‘It is amazing’ Joy for family as funds raised for car seat
AFAMILY who launched a fundraiser to help their baby with half a spine have said they are “very grateful” for the outpouring of public support.
Tracy Fletcher, of Hester’s Way, and her partner Ed told the Gloucestershire Echo they had set up a gofundme page in an effort to raise £850 to go towards a specially developed £1,400 car seat for Baron, who was born on October 5.
Baron has a rare condition called caudal regression syndrome which means he has no control over the lower half of his body.
The family were told there were only five other cases in the country.
He has two holes in his heart, no buttocks, no bladder or bowel control, no lower spine, club feet and his hips have never been in their sockets.
His lungs filled with fluid and he battled heart problems at birth, which meant he was put in a coma and ventilator for three weeks.
Fundraising efforts have surpassed the £850 target at the time of writing, and stands at £1,140.
“It is amazing,” said mum Tracy. “One person even donated £425 which is incredible.
“It means we will be able to take him out and he has the opportunity to live a normal day-to-day life.”
It is vital for Baron that he uses specialist equipment when outside his home, Tracy said: “He can’t tell us when he is in pain.
“So it’s a big relief that we can finally take him to his appointments comfortably.”
The car seat will be produced over the next few months and the next steps for the family would be to buy Baron a specialised pram.
Tracy said: “Money was very tight but he’s our baby, so we would like to try and do this ourselves for the pram.”
“The standard pram is 52cm, but Baron would need a special one about 60 to 65cm.”
One user on the gofundme website said: “Absolutely thrilled for you all, especially your beautiful boy. So chuffed you got the help.”
Another said: “Donated, sorry it’s not much hun but hope it helps. Thinking of you all.”
Tracy said she would like to thank everyone who contributed in any way to the fundraiser.
She said: “Thank you to everyone, we are completely overwhelmed by the support. It is amazing.”
Baron is said to be doing well, although Tracy said: “Baron doesn’t sleep and he is hungry all the time.
“He is doing really well. But it is going to be a long road.”
Tracy added that the support from a mum called Sarah in the neonatal intensive care unit was “totally overwhelming” and they have since become good friends.
For more on the fundraiser visit gofundme.com/a-specialist-carseat-for-baron phillip.thomp[email protected]plc.com