‘It is amaz­ing’ Joy for fam­ily as funds raised for car seat

Gloucestershire Echo - - SCANNER APPEAL - By PHILLIP THOMP­SON

AFAMILY who launched a fundraiser to help their baby with half a spine have said they are “very grate­ful” for the out­pour­ing of pub­lic sup­port.

Tracy Fletcher, of Hester’s Way, and her part­ner Ed told the Glouces­ter­shire Echo they had set up a gofundme page in an ef­fort to raise £850 to go to­wards a spe­cially de­vel­oped £1,400 car seat for Baron, who was born on Oc­to­ber 5.

Baron has a rare con­di­tion called cau­dal re­gres­sion syn­drome which means he has no con­trol over the lower half of his body.

The fam­ily were told there were only five other cases in the coun­try.

He has two holes in his heart, no but­tocks, no blad­der or bowel con­trol, no lower spine, club feet and his hips have never been in their sock­ets.

His lungs filled with fluid and he bat­tled heart prob­lems at birth, which meant he was put in a coma and ven­ti­la­tor for three weeks.

Fundrais­ing ef­forts have sur­passed the £850 tar­get at the time of writ­ing, and stands at £1,140.

“It is amaz­ing,” said mum Tracy. “One per­son even do­nated £425 which is in­cred­i­ble.

“It means we will be able to take him out and he has the op­por­tu­nity to live a nor­mal day-to-day life.”

It is vi­tal for Baron that he uses spe­cial­ist equip­ment when out­side his home, Tracy said: “He can’t tell us when he is in pain.

“So it’s a big re­lief that we can fi­nally take him to his ap­point­ments com­fort­ably.”

The car seat will be pro­duced over the next few months and the next steps for the fam­ily would be to buy Baron a spe­cialised pram.

Tracy said: “Money was very tight but he’s our baby, so we would like to try and do this our­selves for the pram.”

“The stan­dard pram is 52cm, but Baron would need a spe­cial one about 60 to 65cm.”

One user on the gofundme web­site said: “Ab­so­lutely thrilled for you all, es­pe­cially your beau­ti­ful boy. So chuffed you got the help.”

An­other said: “Do­nated, sorry it’s not much hun but hope it helps. Think­ing of you all.”

Tracy said she would like to thank every­one who con­trib­uted in any way to the fundraiser.

She said: “Thank you to every­one, we are com­pletely over­whelmed by the sup­port. It is amaz­ing.”

Baron is said to be do­ing well, al­though Tracy said: “Baron doesn’t sleep and he is hun­gry all the time.

“He is do­ing re­ally well. But it is go­ing to be a long road.”

Tracy added that the sup­port from a mum called Sarah in the neona­tal in­ten­sive care unit was “to­tally over­whelm­ing” and they have since be­come good friends.

For more on the fundraiser visit gofundme.com/a-spe­cial­ist-carseat-for-baron phillip.thomp­[email protected]­plc.com

Baron Fletcher

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