‘Heart­break­ing’ strug­gle to keep son mo­bile

Mum’s ap­peal for new wheel­chair

Gloucestershire Echo - - FRONT PAGE - Kim HOR­TON kim.hor­[email protected]­plc.com

AMOTHER is mak­ing an ur­gent ap­peal to the pub­lic to help raise funds to get her son the new wheel­chair he des­per­ately needs.

James Pendle­ton, 11, from Shur­d­ing­ton, has Duchenne mus­cu­lar dys­tro­phy – a mus­cle wasting con­di­tion that af­fects move­ment and co-or­di­na­tion

His fam­ily have been try­ing to raise funds as he has out­grown his wheel­chair and as he is about to start sec­ondary school they are con­cerned it could im­pact on his ed­u­ca­tion.

Mother Laura An­drews said: “James has a great at­ti­tude to life and I don’t want him to lose that.

“With­out a bet­ter chair he’s start­ing to miss out on things and he’s stay­ing in more which has left him with cabin fever.

“A new wheel­chair will en­able him to keep up with his friends, it will al­low him to travel over dif­fer­ent sur­faces and help him to ex­plore new places.

“It’s heart­break­ing see­ing him strug­gle to access things and when he goes to his new se­nior school in Septem­ber he needs a new chair to par­tic­i­pate in school ac­tiv­i­ties.”

James is cur­rently in a lot of dis­com­fort with his wheel­chair that he has at the mo­ment.

The need is greater than ever now as James is due to go to Cho­sen Hill School, in Church­down and as well as his ed­u­ca­tion po­ten­tially suf­fer­ing he could be­come iso­lated from his friends as well.

He has a keen in­ter­est in pho­tog­ra­phy, mo­tor­sports and aero­planes.

“James loves tak­ing photograph­s at places like Good­wood or the Royal Air Tat­too and he­re­ally en­joys be­ing out­side dis­cov­er­ing new places and it helps him to keep a pos­i­tive at­ti­tude,” Laura said.

The fam­ily started fundrais­ing for a new wheel­chair for James more than a year ago, and al­though they’ve raised over £3,000 there’s still a long way to go as the chair best suited to James’s needs costs sig­nif­i­cantly more.

The fam­ily were told that the chair that would be suit­able for James costs a £18,116.

Laura said: “Ob­vi­ously this is way beyond what we can af­ford and it’s some­thing that isn’t funded through statu­tory mea­sures.”

Now the fam­ily has fundrais­ing sup­port from Caud­well Chil­dren which is a Stafford­shire based na­tional char­ity that pro­vides prac­ti­cal and emo­tional sup­port to dis­abled chil­dren and their fam­i­lies.

Laura has started a new fundrais­ing cam­paign to raise the money they need to buy a state-of-the-art power chair for her son.

She said: “Caud­well Chil­dren has been bril­liant.

“They know how im­por­tant this piece of equip­ment is to James’ fu­ture.

“They’ve set up a spe­cial Just Giv­ing page and have con­tacted other fund­ing or­gan­i­sa­tions, such as foun­da­tions, ro­tary clubs, and ma­sons lodges.

“How­ever, I’m now ap­peal­ing to the pub­lic, the busi­ness com­mu­nity and other fun­ders to give us a help­ing hand in hit­ting our fundrais­ing tar­get.

“I know it’s an aw­ful lot of money but with the sup­port of the com­mu­nity we can make life so much bet­ter for James.”

The or­gan­i­sa­tion knows how im­por­tant this wheel­chair is to James mak­ing progress at school and so­cially.

Caud­well Chil­dren rep­re­sen­ta­tive Mark Bushell said: “This piece of equip­ment will im­prove James’ life im­mea­sur­ably.

“Un­be­liev­ably, there are 70,000 chil­dren in the UK who would ben­e­fit from the cor­rect mobility equip­ment.

“I’m urg­ing the pub­lic and busi­ness com­mu­nity to get be­hind this ap­peal. With their sup­port we can en­sure that James has the spe­cial­ist equip­ment that he so des­per­ately needs and de­serves.”

You can sup­port James at just­giv­ing. com/chair4­james

When he goes to his new se­nior school in Septem­ber he needs a new chair to par­tic­i­pate in school ac­tiv­i­ties

Laura An­drews

Join the de­bate and stay up to date by fol­low­ing us on Face­book @Gloslive on­line

Newspapers in English

Newspapers from UK

© PressReader. All rights reserved.