Mid Sussex Times

Woman’s head shave raises funds for childhood cancer

- Megan O’Neill middy.news@jpimedia.co.uk

A woman will be shaving her head to raise funds for The Childhood Eye Cancer Trust (CHECT) at her sister’s home in Hassocks on Saturday (February 26).

Ash Lamming, from Crawley, was inspired to organise the event when her great-great nephew, Elijah Trott, was diagnosed with a rare eye cancer at the age of 13 months.

The Childhood Eye Cancer Trust is the only UK charity devoted to fighting retinoblas­toma, a rare and aggressive form of cancer that affects babies and young children, mainly under the age of six.

Elijah’s parents became concerned when they were looking at some photos of Elijah and saw a strange white glow in one of his eyes and immediatel­y sought medical advice.

Within a matter of days, and during all the restrictio­ns of the Covid lockdown, Elijah was diagnosed and had to have one of his eyes removed. Thankfully the cancer had not spread anywhere else.

Elijah has adapted well, with regular hospital visits for check-ups and having to have his prosthetic eye changed several times to get the best fit and colour. He will continue to have to do this as he grows.

Ash and her family had never heard of retinoblas­toma or the charity until Elijah was diagnosed, and so she wanted to help to raise awareness of this devastatin­g, and potentiall­y deadly, disease.

The family is aiming to raise £2,000 for the Childhood Eye Cancer Trust, which is completely reliant on public funding.

Ash said: “I am really looking forward to shaving my hair off for such an important cause, if you can ever look forward to being bald. But if I’m honest, I am starting to get a few butterflie­s in my stomach about it. Although the bonus will be that it won’t take me forever to do my hair for a while, and I’ll save me a fortune in hair dye and haircuts. And strangely I have not been short of any volunteers to shave my head. I am also going to be wearing an eye patch for a week, to try to put myself in my little nephew’s position, and that of many other children and young people who have been affected by retinoblas­toma. I’m going to have to update my Facebook avatar!”

The plan is to livestream the event on Facebook, which will then be uploaded to various locations, including the fundraisin­g page.

Diane Emery, fundraisin­g manager at the Childhood Eye Cancer Trust, said: “In the UK, around one child each week is diagnosed with this devastatin­g cancer.

“We offer support to every UK family affected, as well as campaign to raise awareness of the signs and symptoms and fund research into its prevention and treatment.

“We are extremely grateful for all that our fundraiser­s do, to help fund our work.

“We don’t receive any government funding, so we rely on the generosity of supporters like Ash.

“We are incredibly grateful to her – and proud that she has chosen such a fantastic challenge.”

Around 98 per cent of children will survive retinoblas­toma in the UK but early diagnosis is crucial in order to save a child’s eyes, sight and life. To support Ash and her family, donate via her Facebook Fundraisin­g Page www.facebook.com/ donate/4212725242­163267

 ?? ?? Having a prosthetic eye has not phased Elijah who has adapted well to the hospital visits and treatments
Having a prosthetic eye has not phased Elijah who has adapted well to the hospital visits and treatments

Newspapers in English

Newspapers from United Kingdom