– but I had a healthy baby girl’

in fat, low in carbs and low in protein.

“I have to cook everything from scratch for her and I have to be incredibly precise in the amount of grams I give her.

“It has worked wonders for Ella. She is much more alert.”

Unlike diabetes patients, Emily says Wales does not provide any dietary support for people with Glut1 and has called for the Welsh Government to create a designated ketogenic team.

She says the Daily Garland Foundation, a registered charity for people with epilepsy, is willing to fund a dietician in Wales specifically for Glut1 patients for 12 months.

Emily spoke in front of Assembly Members yesterday about the lack of awareness and support around the condition.

“Ella is an amazing girl, and despite everything she’s been through is always smiling – and that motivates me to make a difference.

“There are hundreds of women who can not have children or go through the turmoil of a miscarriage and I am blessed to have my daughter with me.”

In response to the delays in diagnosing Ella with Glut1, a spokeswoman for Aneuin Bevan University Health Board said: “We are sorry to hear that Emily has concerns about the care Ella has received. We would ask that Emily makes contact with us directly so we can look into this further.”

And in response to Emily’s call for better dietary support, a Welsh Government spokesman said: “Currently services for patients in South Wales who require access to support for a ketogenic diet are provided in Bristol.

“Discussions are taking place about the possibility of these services being provided more locally.”