Long Covid support
The first resource of its kind to support those living with Long Covid and the healthcare professionals involved in their care, has been launched by experts from the University of Stirling.
Led by Professor Kate Hunt, a specialist in behavioural sciences and health at the Institute for Social Marketing and Health (ISMH), the new online resource‘long Covid in Adults’was developed by a team of researchers over two years, following detailed interviews with those living with Long Covid.
It aims to improve understanding of what it is like to live with Long Covid and support and care for those impacted by the condition.
The resource covers topics including people’s experiences of Long Covid, how they manage the condition day to day, seeking help from the GP, impacts on family, work and social life, the financial impact and medicines and therapies.
It includes video, audio and written extracts from interviews which bring to life the experience of living with Long Covid, as well as messages for health care professionals from those living with Long Covid, and their views on public understandings of the illness.
It is published and freely available on healthtalk.org – a website run by the Dipex Charity.
Professor Hunt said:“this is a very valuable resource for patients, family and healthcare professionals and is the first resource of its kind to detail the lived experiences of adults with Long Covid, providing practical information and support for those affected and their families and carers.
“Many people experiencing Long Covid feel disbelieved about the debilitating nature of their illness, and many members of the healthcare professions and public don’t appreciate that Long Covid can affect people of all ages and people who were very healthy and physically active people before they got Covid.”
Dr Alice Maclean, a specialist in patient experiences of illness, also based at Stirling’s ISMH, said“the resource, now available on healthtalk.org, can be used in training for doctors, nurses, social care and other healthcare workers – and ultimately improve care to patients.”
The resource is the result of a study funded by the Scottish Government’s Chief Scientist Office. The research team included experts from ISMH and the Nursing, Midwifery and Allied Health Professional Research Unit (NMAHP-RU), also based at the University of Stirling, as well as academics from the University of Aberdeen and University of Oxford.