Brave Maeve takes on char­ity walk

Stockport Express - - Front Page - EMMA CURRY

A10-YEAR-OLD with a rare ge­netic con­di­tion which causes dam­age to her or­gans is pre­par­ing to take part in a four-kilo­me­tre spon­sored char­ity walk.

Maeve Byrne, from north Red­dish, was just 10-months-old when she was di­ag­nosed with cysti­nosis, which causes crys­tals to ac­cu­mu­late in her or­gans.

Her mum, Sinead, ini­tially took Maeve to the doc­tor be­cause she was a sickly baby, of­ten dis­tressed, vom­it­ing fre­quently and not hit­ting her mile­stones as she should have been.

Af­ter blood tests at Step­ping Hill Hospi­tal, Maeve was re­ferred to Royal Manch­ester Chil­dren’s Hospi­tal, where a meta­bolic spe­cial­ist di­ag­nosed her with cysti­nosis, a con­di­tion which af­fects just one in 200,000 chil­dren in the UK.

Sinead said: “As a par­ent I just knew some­thing wasn’t right, but noth­ing could have pre­pared me for the news I re­ceived.

“I was ab­so­lutely dev­as­tated, it shook my world to hear that my lit­tle girl had a long-term ill­ness and would even­tu­ally need a kid­ney trans­plant.”

De­spite her health prob­lems, Maeve is set to do the Lantern Walk in Heaton Park on Novem­ber 17 to raise funds for Royal Manch­ester Chil­dren’s Hospi­tal, as thanks for the care she has re­ceived over the past nine years.

Maeve is seen in the re­nal ward, as her kid­neys are cur­rently most badly af­fected. She has to take med­i­ca­tion via a gas­tron­omy tube in her stom­ach ev­ery six hours, as well as eye drops ev­ery hour.

Due to mus­cu­loskele­tal dis­com­fort, walk­ing any dis­tance can be ex­haust­ing.

Sinead said: “Maeve heard about the char­ity’s Lantern Walk and wanted to take part to help other poorly chil­dren treated on the re­nal ward.

“So far she’s raised over £1,000 which is just in­cred­i­ble – the sup­port Maeve has re­ceived is amaz­ing. I couldn’t be more proud of my lit­tle girl, af­ter ev­ery­thing she has been through she is still think­ing of oth­ers and never com­plains about all the med­i­ca­tion she has to take, she just gets on with it and is my ab­so­lute su­per­star.” An­gela Rowe, com­mu­nity fundrais­ing man­ager at Royal Manch­ester Chil­dren’s Hospi­tal Char­ity, said: “The walk will be a chal­lenge for Maeve due to her con­di­tion, so she should be ex­tremely proud of her­self, es­pe­cially with the in­cred­i­ble amount she has raised.” »●To spon­sor Maeve, visit just­giv­ fundrais­ing/sinead­byrne6.

●●Maeve Byrne with mum Sinead and, below, in hospi­tal

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