OF A LIFETIME FOR TERMINALLY-ILL KIDS
12, has Duchenne muscular dystrophy, a terminal illness which usually kills sufferers in their teens.
Wheelchair- bound Logan, of Crawley, West Sussex, wanted to make memories with his brother Casey, 19, and sister Madison, 14. The siblings enjoyed a special safari at the Animal Kingdom park.
Mum Lynsey, 41, said: “Last year, Logan stopped being able to walk. We just make the most of each day. We haven’t had a family holiday abroad since he was diagnosed, so this is a big thing for us and we’re never going to get another chance to come here.”
The holiday is equally precious for nurse Elaine Hildrick, 45, whose son Conor was struck with cryptogenic liver disease when he was 12.
Elaine was told Conor would die if he didn’t have a liver transplant by 20.
Last year he was taken by ambulance from his home in York to London when a liver became available. It had belonged to an 11-year-old girl who had died in a road accident. When Conor, now 18, pulled through, Elaine immediately applied to take him and sister Abbie, 19, on the trip.
She said: “I was like a lunatic – I really thought we were going to lose him. We planned his funeral together. He wanted the Indiana Jones theme tune. We’d decided we wouldn’t say goodbye before he went under because I would just have collapsed. Instead, we said ‘see you soon’.thankfully, he pulled through and I applied for the trip the next day.
“When he was ill we couldn’t go anywhere because we could never be