‘Gen­tle walk’ to sup­port new char­ity group

Surrey Advertiser - - Front Page -

SALLY Tay­lor­son and Al­lie Klop­pers, two new rep­re­sen­ta­tives of the na­tional PBC Foun­da­tion, both of whom live in Go­dalm­ing, are ask­ing peo­ple to mark In­ter­na­tional PBC Day on Sun­day Septem­ber 10 with a gen­tle walk (and op­tional pic­nic).

It is be­ing held for any­one with Pri­mary Bil­iary Cholan­gi­tis, a rare auto-im­mune dis­ease.

Suf­fer­ers and their friends, fam­i­lies and dogs are in­vited to meet at 11.30am at Clan­don House and Gar­dens in Guild­ford.

Sally and Al­lie have re­cently started or­gan­is­ing Guild­ford-based PBC meet­ings for those in Sur­rey with the dis­ease. The next meet­ing is on Satur­day Oc­to­ber 14 at Sur­rey Uni­ver­sity.

In PBC, for rea­sons not fully un­der­stood, the im­mune sys­tem, the body’s nat­u­ral de­fence against in­fec­tion and ill­ness, at­tacks the bile ducts. This grad­u­ally causes the bile ducts to be­come swollen and scarred, ob­struct­ing the flow of bile out of the liver.

Bile then builds up in the liver, which dam­ages it and may lead to cir­rho­sis.

It is not clear how many peo­ple are af­fected by PBC in the UK. Es­ti­mates vary from 15,000 to 20,000, and the rates of PBC in the UK are higher than in some other parts of the world. The rea­sons for this are un­known.

About 90% of those af­fected are women and most cases are di­ag­nosed in peo­ple aged 40-60, al­though PBC has been di­ag­nosed from 20 on­wards.

The dis­ease is both in­cur­able and pro­gres­sive.

For more in­for­ma­tion on ei­ther the Septem­ber event or the Oc­to­ber meet­ing, email sal­ly_­tay­lor­[email protected]­mail.com or al­lie.klop­[email protected] gmail.com

There is a web­site at www. pbc­foun­da­tion.org.uk .

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