‘Gentle walk’ to support new charity group
SALLY Taylorson and Allie Kloppers, two new representatives of the national PBC Foundation, both of whom live in Godalming, are asking people to mark International PBC Day on Sunday September 10 with a gentle walk (and optional picnic).
It is being held for anyone with Primary Biliary Cholangitis, a rare auto-immune disease.
Sufferers and their friends, families and dogs are invited to meet at 11.30am at Clandon House and Gardens in Guildford.
Sally and Allie have recently started organising Guildford-based PBC meetings for those in Surrey with the disease. The next meeting is on Saturday October 14 at Surrey University.
In PBC, for reasons not fully understood, the immune system, the body’s natural defence against infection and illness, attacks the bile ducts. This gradually causes the bile ducts to become swollen and scarred, obstructing the flow of bile out of the liver.
Bile then builds up in the liver, which damages it and may lead to cirrhosis.
It is not clear how many people are affected by PBC in the UK. Estimates vary from 15,000 to 20,000, and the rates of PBC in the UK are higher than in some other parts of the world. The reasons for this are unknown.
About 90% of those affected are women and most cases are diagnosed in people aged 40-60, although PBC has been diagnosed from 20 onwards.
The disease is both incurable and progressive.
There is a website at www. pbcfoundation.org.uk .