Sud­den Un­ex­pected Death in Epilepsy

The People's Friend - - Helping Others -

Ev­ery week there are 21 epilepsy-re­lated deaths in the UK. Fifty per cent of these deaths are caused by SUDEP. In the ma­jor­ity of cases, SUDEP is be­lieved to be pre­ventable through ap­pro­pri­ate risk man­age­ment tech­niques, such as tak­ing med­i­ca­tion at the same time ev­ery day.

“What we need to do is re­in­force these re­ally sim­ple mes­sages about risk man­age­ment, which could po­ten­tially help to save a huge amount of lives,” Amy says. “Be­cause it’s a dif­fi­cult sub­ject to talk about, con­sul­tants of­ten don’t tell their pa­tients about SUDEP, but if you don’t know that you’re at risk, you can’t man­age it.

“When Emily died, none of us had heard of SUDEP. That is our mes­sage re­ally: those with epilepsy need to know about this, so that they can act on it. It doesn’t have to be a scary con­ver­sa­tion, but it re­ally is such an im­por­tant one to have.”

For fur­ther in­for­ma­tion about SUDEP, visit the SUDEP Ac­tion web­site at

Emily and Amy.

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