The Scotsman

MPS set to debate the treatment and research of ‘devastatin­g’ illness ME

- By CHRIS MARSHALL

A Glasgow MP will today lead a landmark debate atresearch into my algicencep halo myelitis( ME )– also known as chronic fatigue syndrome – an illness which affects around 20,000 Scots.

Carol Monaghan, SNP member for Glasgow North West, will lead calls for better support for those living with the “devastatin­g” condition, which leaves one in four suf- ferers housebound, bedbound and, in some cases, unable to wash, clothe or feed themselves. Ms Monaghan said the debate was an opportunit­y to bring about “real change” for those living with ME.

She said: “Many sufferers report that their ME was first triggered by a viral infection such as flu or glandular fever and have been battling with this debilitati­ng condition ever since. Indeed, ME presents in much the same way as a flu with extreme headaches, muscular pain, poor appetite, sensitivit­y to light and broken sleep common.

“With ME, however, these symptoms do not abate and can remain for many years. Elderly family members are often the main carers and the effect on relationsh­ips is significan­t.”

The most significan­t study into ME, the PACE trial, recommende­d exercise and psychologi­cal therapy. It has since been heavily criticised and discredite­d by researcher­s.

Newspapers in English

Newspapers from United Kingdom