In a box, then one appeared above...
learned it was nine on a scale of 10. That was what really floored me.”
Willie had surgery to remove his prostate and was put on a course of radiotherapy. It caused irreparable damage to his bladder and, even more significantly, his bowel.
“There was always an urgency to get to the toilet and the pain was just atrocious,” explains Willie.
“I couldn’t leave the house properly and I felt so isolated. At its worst it was so bad that I remember thinking that having cancer would be better than this.
“I actually had conversations with friends and family, saying that if I’d known how awful the radiotherapy was going to be I might not have had it.
“In a rational state of mind I’d probably still have gone ahead, but it got so bad I was questioning whether I should have just taken my chances.
“I went to bed at night dreading the next morning and I’d wake up dreading the day ahead.”
It was being put in touch with a local Transformative Care After Treatment, TCAT, project at Ninewells Hospital in Dundee that turned things around for Willie.
The TCAT programme was set up to test and spread new ways of supporting people with cancer through £5million of funding from Macmillan Cancer Support.
It works in partnership with the Scottish Government, the NHS, local authorities and the third sector.
Each of the 25 projects across the country is unique and attempt to cover the wide range of needs of patients.
“I wasn’t prepared for what was happening to me and it wasn’t until I was put in touch with the colorectal nurse involved with TCAT and Ninwells that I finally felt someone understood,” said Willie.
“I had gone from someone who was always active to feeling like I was contained in a box. But it was as if a blue sky appeared above me. The difference she made was amazing.”
Willie was also helped by Maggie’s Centre and the Pelvic Radiation Disease Association, PRDA, and he has subsequently become the first Scottish trustee and is looking to help it extend the support it offers in Scotland.
Willie’s resolve has been sorely tested with the recent news that, after completing two years of hormone treatment, his PSA levels have risen again.
“It means the cancer is back but I am looking at all options. I want to keep doing as much as I can and keep
fighting.”
The Dundee TCAT project was set up to test new ways to support people with cancer