MND dad to release song
McConville family rally round charity
his own songs too. He’s been living with MND for a couple of years now and on his last visit to London, he told me he had written a song and I said we should record it the next time I visited them in Carluke.
“So I took my little mobile recorder the next time I went up, I learned the chords and then I recorded him singing it.
“Listening back to the raw recordings it was great to capture him in his home environment and funny to be able to hear it all around in the background.
“The idea of recording his new song was initially a fun activity to do together, but on a deeper personal level for myself and for our family, to have something unique to remember him by in years to come, to capture him while we still can.”
John praised the NHS for their good work and admits he was excited at the prospect of recording his song.
Speaking about his condition, he said: “It’s mainly my limbs. My arms and legs can’t do much; I get around in a wheelchair. I do manage quite well on a daily basis, with daily living. Laura Cunningham has been a great help as well as the other people in the network who deal with providing support to people with all kinds of disabilities.
“I was in the bathroom or the shower singing away and you sing melodies, ‘that’s not a bad tune’ I said.
“I got the guitar out and started playing the song that was in my head.
“The words came after. I wrote it down in a notebook so I wouldn’t forget it then a year later we recorded it.”
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