LONG COVID: A TOOLKIT
BE PREPARED
‘Keep a symptom diary,’ suggests Dr Marsh, who notes that doing so over the course of a week or a month will tell a more accurate story than memory recall alone.
GET DESCRIPTIVE
Describe your symptoms tangibly. ‘Rather than say you’re tired, explain to doctors, employers and loved ones that fatigue has stopped you from doing X, Y, Z,’ advises Dr Marsh.
SEEK SUPPORT
Join online support groups and follow trusted accounts. ‘Being able to discuss similar symptoms and potential treatments on social media can be really helpful in a practical way,’ notes Dr Perego.
TAKE CARE
‘Psychological support can help you cope with your change of circumstances – grieving for a lost life,’ explains Dr Marsh. Confide in loved ones or book an appointment to speak to your GP.
STAY ALERT
Beware those trying to make money off you. ‘There are already people operating online trying to sell “miracle” cures to long Covid sufferers,’ warns Dr Marsh. The word ‘cure’ should trigger alarm bells.
PRIORITISE CONNECTION Be honest with your friends and family. ‘Being clear about what you do and don’t have the energy for will help prevent any feelings of guilt as a result of having to cancel plans,’ advises Dr Marsh.
KEEP GOING
Remember that it’s not your fault. ‘Don’t feel disheartened if someone doesn’t understand how severe your long Covid is,’ says Dr Perego. ‘Surround yourself with people who support you.’