Houston Chronicle

Easter Seals event is a walk with a purpose.

Easter Seals event serves as fundraiser

- By Suzanne Garofalo “A Special World” shares programs and experience­s by and for the disabled community in Greater Houston. suzanne.garofalo@chron.com

People with disabiliti­es and their families who rely on Easter Seals Greater Houston just might walk to the ends of the Earth to support the organizati­on that connects them with vital services. But such a trek isn’t necessary to go the distance for the nonprofit, and they’re inviting the community to join them.

April 24 marks the 10th anniversar­y of Walk With Me, presented by Prosperity Bank and other sponsors, which serves as the sole annual fundraiser for Easter Seals’ local chapter. Families of children, adults and veterans with disabiliti­es have formed teams to take part at the Houston Zoo, which has hosted the noncompeti­tive 5K or shorter walk (or roll, for those in wheelchair­s) since its inception. The deadline to walk in person has passed, but the pandemic prompted organizers to create a virtual option; registrati­on for that is open through April 23.

Easter Seals Greater Houston is the only local nonprofit serving people of all ages, with any type of disability, and their families. Its therapy, training, education and support services help those with disabiliti­es thrive.

The organizati­on operates via a combinatio­n of government grants, Medicaid and private insurance, and philanthro­py, according to Elise Hough, executive director. It serves 14,500 area families, 67

percent of whom fall at or below poverty level, developmen­t director Kelly Klein noted.

Avery Reilly, 13, and Jack Grodin, 5, are serving as honorary ambassador­s for this year’s Walk With Me. The two attend Easter Seals’ Caroline School, which offers a customized curriculum to develop cognitive, social and physical skills for students 18 months to 21 years old. Avery has participat­ed in the walk since 2014, Jack since 2019.

It took doctors several years to find the cause of Avery’s low muscle tone, developmen­tal delays and cerebellar atrophy. In that time, she and her parents,

Helena and Brennan Reilly, learned to use her iPad to communicat­e via Easter Seals’ BridgingAp­ps program. She also attended its respite care and camp offerings. After her genetic defect was diagnosed when she was 10, Avery began attending the Caroline School, where she enjoys reading to the younger students.

“Easter Seals really gets to know your kid,” Helena Reilly said, noting its proactive

approach to addressing social deficits. “They knew she needed to go to Camp Smiles.”

As a peppy Jack flicked a light switch off and on at the school, his mother listed some of the more than 10 operations, both planned and emergency, he has undergone in his short life: for his bladder and kidneys, eyes, tonsils and adenoids, ears and a broken femur that landed him in a body cast for eight

weeks. He receives physical, occupation­al and speech therapy. As his medical issues and diagnoses evolve, his parents, Amma and Jared Grodin, see gains they attribute to Easter Seals accommodat­ing his needs, particular­ly his speech.

“This has been a wonderful, safe place to be,” Amma Grodin said. “… We’ve just dipped our toe into what Easter Seals has to offer. I feel like this is a lifelong relationsh­ip.”

As of early April, Team Avery had raised $5,400 from 20 donors and team walkers. Jack’s Pack had raised $5,000 from 45 people near and far, including El Paso and Dallas as well as Alaska and England. As of publicatio­n, Easter Seals Greater Houston had tallied just over $533,500 from nearly 2,400 participan­ts toward its goal of $1 million.

Walk With Me has grown since the first event in 2011. Back then, the goal was to break even. But it netted $100,000 with 800 participan­ts, Hough recalled.

“We knew we were onto something great,” she said.

The stakes are high for this year’s walk. Government funding has dropped during the pandemic because many of the parents of children Easter Seals serves are front-line workers “who can’t be home for therapy,” Hough said. Similarly, contributi­ons from foundation­s whose assets are based in the oil and gas industry have fallen in the COVID-hit economy. At the same time, the organizati­on has tried to step up mental health support for clients who are veterans.

Ninety-one cents of every dollar goes directly to clients, an accomplish­ment she jokingly attributed to being “a little cheap” with administra­tive duties and the relatively low-cost walk as a fundraiser.

“I’m really proud of the fact that Walk With Me is recognized in the community,” said Hough, adding that Easter Seals will continue to support all people with disabiliti­es. “We don’t care what you look like, what you have or where you come from. It is our joy and passion.”

 ?? Godofredo A. Vásquez / Staff photograph­er ?? Jack Grodin pushes Avery Reilly’s wheelchair at the Caroline School as their mothers, Helena Reilly, left, and Amma Grodin, watch. The kids are honorary ambassador­s for Easter Seals Greater Houston’s Walk With Me.
Godofredo A. Vásquez / Staff photograph­er Jack Grodin pushes Avery Reilly’s wheelchair at the Caroline School as their mothers, Helena Reilly, left, and Amma Grodin, watch. The kids are honorary ambassador­s for Easter Seals Greater Houston’s Walk With Me.

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