Los Angeles Times

Gifts to young cancer patients

Nonprofit providing gifts to 18- to 39-year-olds is raising money

- By Pam Kragen Kragen writes for the San Diego Union-Tribune.

A mother starts a charity to honor the generosity of a son who died of cancer.

RAMONA, Calif. — Before he died from cancer at age 29, Silas River Bennett spent his final months taking photograph­s of the world around him, emailing friends, buying Christmas gifts for his sisters and encouragin­g his family to give to the needy.

“What was important to him was to have a sense of himself outside of cancer,” said his mom, Lorraine Kerz of Ramona.

After Bennett died in a Massachuse­tts hospital in May 2008, Kerz wanted to honor the creative spirit and generosity of her son, whose nickname was “Sy.” The result was Sy’s Fund, a Ramona-based all-volunteer national nonprofit that has fulfilled the wishes of more than 250 people ages 18 to 39 who are battling cancer.

Just as a camera and laptop helped Sy escape the reality of his terminal illness, Kerz said Sy’s Fund provides cancer patients with small gifts — such as laptops, cameras, guitar lessons, chiropract­or visits or printers — to lift their spirits and refocus their energies in a positive direction.

For a 23-year-old woman with lymphoma, the gift was $500 worth of yarn and software so she could start knitting again. For a 19-year-old man with lymphoma, it was a set of weights for when he felt like exercising and some Legos kits for when he didn’t. And for a mom in her 30s recovering from a double mastectomy, it was a double jogging stroller she could use to start running again.

“The young cancer patients 18 to 39 are very underserve­d, and they’re at a point where a lot of them are just jumping off in their lives. They get this diagnosis and suddenly their lives get very small,” Kerz said. “This is about how do you open that up a little bit, give them something to smile about and help them through their day a little bit outside of cancer.”

Gifts from Sy’s Fund average about $500 in value. Sometimes, when donations are slow, the organizati­on can have up to 15 people waiting for their wishes to be fulfilled. This bothers Kerz because some of the applicants are so sick they don’t have time to wait. But after the coronaviru­s pandemic hit last year, Sy’s Fund had to cancel its 2020 fundraiser­s and suspend its gift-giving.

The organizati­on will get back on track this month with a COVID-safe fundraiser planned April 10 and 11. It’s a virtual scavenger hunt that participan­ts can play anywhere in the country with just a cellphone.

The fund has a $10,000 goal, but Kerz said no donation is too small. A few months ago she got a check in the mail for $100 from the mom who’d been granted the double-stroller. Kerz said the woman’s two boys had outgrown the stroller, so she sold it and paid the gift forward by sending the proceeds back to Sy’s Fund.

Bennett was a grad student living in New Hampshire when he went to the hospital in fall 2007 with severe back pains that he thought were caused by a pinched nerve. Instead, he was diagnosed with stage 4 lung cancer that had spread to his bones and eaten through one of the vertebrae in his spine. Doctors believed the cancer was environmen­tally caused, perhaps by exposure to radon gas in the basement where he lived or toxins in the paints he used as a painter.

Not long before his diagnosis, Bennett had gone back to school to study political journalism. Kerz said her son was a man with a great sense of humor and an “electric intellect” who loved debating, watching “Jeopardy!” on TV and telling stories with his photograph­s.

“He had a very creative mind and a feisty spirit. He was wildly independen­t and a free spirit, for sure,” she said.

In the year after Bennett died, Kerz started the paperwork to create the Sy’s Fund foundation. Its first gifts were distribute­d in 2010. On average, it grants about 25 requests each year. Kerz said Sy’s Fund has seven board members who meet monthly over Zoom to vote on applicatio­ns. Applicants must be in treatment for cancer and must submit a verificati­on letter from their doctor or oncology team.

The group raises money through three fundraiser­s each year, such as golf tournament­s and 5K races. This year, because of the pandemic, they’re trying a virtual fundraiser for the first time. After registerin­g online, participan­ts must download the “Let’s Roam” app to their phone.

The scavenger hunt — which must be completed within five hours on either April 10 or 11 — involves fulfilling some 30 tasks that range from making 10-second themed videos, recreating a famous painting with objects around the house or reproducin­g the Sy’s Fund logo with colorful items. Participan­ts must then upload the videos and photos to Let’s Roam to mark off tasks on their checklist.

The individual contestant­s, teams or families will be scored for their creativity and adherence to the rules. Prizes will go to the two top finishers.

To apply for a wish grant, visit sysfund.org. The organizati­on is also seeking more volunteer board members. For details, email Kerz at lorraine@sysfund.org.

 ?? Lorraine Kerz ?? SY’S FUND provides small gifts to cancer patients so they can engage in hobbies and interests.
Lorraine Kerz SY’S FUND provides small gifts to cancer patients so they can engage in hobbies and interests.

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