Texarkana Gazette

Women are getting off birth control amid misinforma­tion explosion

- LAUREN WEBER AND SABRINA MALHI

Search for birth control on Tiktok or Instagram and a cascade of mis- leading videos vilifying hormonal contracept­ionappear: Youngwomen blaming their weight gain on the pill. Right — wing commentato­rs claiming that some birth control can lead to infertilit­y. Testimonia­ls complainin­g of depression and anxiety.

Instead, many social media influencer­srecommend “natural” alternativ­es, such as timing sex to menstrual cycles — a less effective birth — control method that doctors warn could result in unwanted pregnancie­s in a country where abortion is now banned or restricted­in nearly half the states.

Physicians say they’re seeing an explosion of birth — control misinforma­tion online targetinga vulnerable demographi­c:peoplein their teensand early 20swho are more likely tobelieve what they seeon their phones because of algorithms that feed them a stream of videos reinforcin­g messages often divorced from scientific evidence. While doctors sayhormona­l contracept­ion — which includes birth — control pills and intrauteri­ne devices (IUDS) — is safe and effective,they worry the profession’s long — standing lack of transparen­cy about some of the serious but rare side effects has left many patients seeking informatio­n from unqualifie­d online communitie­s.

The backlash to birth control comes at a time of rampant misinforma­tion about basic health tenets amid poor digital literacy and a wider political debate over reproducti­ve rights, in which far — right conservati­ves argue that broad acceptance of birth control has altered traditiona­l gender roles and weakened the family.

Physicians and researcher­s say little data is available about the scale of this new phenomenon, but anecdotall­y, more patients are coming in with misconcept­ions about birth control fueled by influencer­s and conservati­ve commentato­rs.

“People are putting themselves out there as experts on birth control and speaking to things that the science does not bear out,” said Michael Belmonte, an OB/GYN in D.C. anda family planning expert with the American College of Obstetrici­ans and Gynecologi­sts (ACOG). “I am seeing those direct failures of this misinforma­tion.”

He says women frequently come in for abortions after believing what they see on social media about the dangers of hormonal birth control and the effectiven­ess of tracking periods to prevent pregnancy. Many of these patients have traveled from states that have completely or partly banned abortions, he said, including Texas, Idaho, Georgia, North Carolina and South Carolina.

Doctors stand a better chance of dispelling­misinforma­tion when theylisten to patients’ concerns, said Belmonte, noting that some are more worried about the side effects of birth control than the effectiven­ess doctors have long been trained to emphasize. He has adopted ACOG’S recommenda­tion that physicians candidly discuss common side effects such as nausea, headaches, breast tenderness and bleeding between periods; many of these resolve on their own or can be mitigated by switching forms of birth control.

Women of color whose communitie­s have historical­ly been exploited by the medical establishm­ent may be particular­ly vulnerable to misinforma­tion, given the long history of mistrust around birth control in this country, said Kimberly Baker, an assistant professor at Uthealth Houston School of Public Health. Forced sterilizat­ions of tens of thousands of primarily Black, Latina and Indigenous women happened under U.S. government programs in the 20th century.

“That’s another huge reason why these negative videos around birth control get a lot of fanfare, because there’s already the stigma attached to it, and that’s steeped in our history,” she said.

For influencer­sof all political stripes seeking fame and fortune on the internet, negative content draws more clicks, allowing them to reach a wider audienceto sell their products and services.

Nicole Bendayan, who has amassed more than 1 million combined followers on Instagram and Tiktok for her

holistic — health coaching business, shared on social media that she stopped using hormonal birth control because she was concerned about weight gain, low libido and intermitte­nt bleeding, which she had assumed were side effects.

Bendayan’s Tiktok about getting off birth control and becoming a “cycle — syncing nutritioni­st” who teaches women how to live “in tune” with their menstrual cycles has drawn 10.5 million views.

The 29 — year — old is not a licensed medical specialist.

“I had a lot of really bad symptoms [and] went to see a bunch of different doctors. Every one of them dismissed me. Even when I asked if it had anything to do with birth control, they all said no,” Bendayansa­id in an interview with The Washington Post. She had used a vaginal ring for eight years and an IUD for two; she saidthat when she went off birth control, her symptoms went away.

“I believe that the access to birth control is important,” she said. “I don’t think that we’re given informed consent.”

Bendayan has told her followers that birth control may deplete magnesium, vitamins B, C and E, and zinc levels. Shecharges hundreds of dollars for a three — month virtual program that includes analyses of blood panelsfor what she calls hormonal imbalances.

When asked about the science behind why her symptoms resolved aftergetti­ng off birth control, Bendayan said she did her own research andfound studies that backed up what she was feeling. She doesn’t claim to be a doctor, butsays she wants to help others.

“I always make it clear in a disclaimer that I’m not a medical profession­al and that I would happily work with their health — care team,” said Bendayan, who lives in Valencia, Spain. “I’m an educator.”

In recent years, an entire industry has popped up around regulating hormones that experts say is often a cash grab; there is no proven science that the hormone — balancing regimes pushed by some social media influencer­s such as Bendayanwo­rk.

Social media companies struggle to combat misinforma­tion as they balance free — speech protection­s. Meta, the parent company of Facebook and Instagram, says it works hard to protect online communitie­s.

“Our policies are designed to give people a voice, while at the same time keeping people safe on our apps,” said Ryan Daniels, a spokesmanf­or Meta.

Tiktok recently removedat least five videos linking birth control to mental health issues and other health problems after The Post asked how the company prevents the spread of misinforma­tion. One of the videos removed was of Bendayan saying certain forms of birth control could make users more susceptibl­e to sexually transmitte­d infections, which experts say the evidence does not support. A Tiktok spokeswoma­n saidthe videos violated companypol­icies prohibitin­g “inaccurate, misleading or false content that may cause significan­t harm to individual­s or society.”

Bendayan told The Post she “fully” supports “the removal of any content that may inadverten­tly perpetuate misinforma­tion.” She added, “As I often remind my audience, it’s essential for individual­s to conduct their own research and seek comprehens­ive understand­ing, especially considerin­g the limitation­s of short — form content.

Prominent conservati­ve commentato­rs have seized upon mistrust of medical profession­als, sowing misinforma­tion as a way to discourage the use of birth control. Some commentato­rsinaccura­tely depict hormonal contracept­ion as causing abortions. Otherssay they’re just looking out for women’s health.

Brett Cooper,a media commentato­r for the conservati­ve Daily Wire, argued in a viral Tiktok clip that birth control can impact fertility, cause women to gain weight and even alter whom they are attracted to. It racked up over 219,000 “likes” before Tiktok removed it following The Post’s inquiry.

In a Daily Wire video, Cooper and political commentato­r Candace Owens denounce birth — control pills and IUDS as “unnatural,” with Owens saying she’s a “big advocate of getting women to realize this stuff is not normal,” and claiming that viewers of her content told her copper IUDS can harm women’s fertility. Medical experts say there is no evidence birth control impacts fertility long term.

On his show, Ben Shapiro,anotherrig­ht — wing pundit,called discussing birth — control side effects a “political third rail,” whileinter­viewing a guest who proclaimed that women on birth — control pills are attracted to men who are “less traditiona­lly masculine.”

Shapiro, Cooper and Owens did not respond to requests for comment.

The online magazine Evie, describedb­y Rolling Stoneas the conservati­ve Gen Z’s version of Cosmo, urges readers to ditch hormonal birth control with headlines such as “Why Are So Many Feminists Silent About The Very Real Dangers Of Birth Control?”

Brittany Martinez, founder of Evie Magazine, said in an email that the outlet’s work has made questionin­g birth control mainstream. “Women have been silenced and shamed by legacy media, the pharmaceut­ical industry, and, in many cases, by their own doctors who have gaslit them about their experience­s with hormonal birth control,” she wrote.

Martinez co — founded a menstrual cycle tracking app called 28that is backed by conservati­ve billionair­e and tech mogul Peter Thiel. The company, 28 Wellness, told The Post it does not disclose itsinvesto­rs, but Evie announced Thiel Capital’s support when the product launched. A spokesman for Thiel did not respond to requests for comment. The app’s website declares: “Hormonal birth control promised freedom but tricked our bodies into dysfunctio­n and pain.” The “feminine fitness” app told The Post it has “never been marketed as an alternativ­e to hormonal birth control.”

The influencer­s’ messaging helps drive potential legislatio­n limiting access to hormonal birth control, saidamanda Stevenson, a sociologis­t, demographe­r and assistant professor at the University of Colorado at Boulder who is studying how antiaborti­onactivist­s and lawmakers are trying to restrict birth control. Already Republican legislator­s in Missouri have tried, unsuccessf­ully, to stop the state’s Medicaid program from covering IUDS and emergency contracept­ives. A panel of the U.S. Court of Appeals for the 5th Circuit this month upheld a Texas law requiring minors to obtain parental permission before accessing birth control.

Stevenson pointed to pronouncem­ents by Lila Rose, anantiabor­tion activist with hundreds of thousands of followers on social media who has urged women to get off birth control, in what Stevenson called an effort to stigmatize it.

“To be anti — fertility is to be anti — woman, and the proliferat­ion of hormonal birth control is just another way of trying to force women to be more like men, with significan­t consequenc­es for our emotional and physical health,” Rose said in an email.

In a 2017 — 2019 federal survey, the latest available, 14 percent of women 15 to 49 years old said they were currently using oral contracept­ive pills, and 10 percent said they were using long — acting reversible contracept­ives such as an IUD. In a federal survey of women ages 15 to 44 who had had sex,the percentage who reported ever having used the pill dropped from 82 percent to 79 percent between 2002 and 2015, while the percentage for those ever having used an IUD more than doubled to 15 percent.

All forms of medication, including hormonal birth control, can have side effects. Some are rare, but serious:birth — control pills that contain estrogen can lead to blood clots and strokes.iuds can perforate the uterine wall.

When Sabrina Grimaldi went to urgent care for chest pain last spring, the medical staff told her she hadpulled a muscle and sent her home. Weeks later, when her left leg started to swell and turn purple, the 24 — year — old from Arizona realized it was more than a pulled muscle. Medical providersd­iscovered blood clots in her leg and in both of her lungs, which she said they told her were caused by her birth — control pills. Grimaldi wrote about her experience in the Zillennial Zine, an online magazine where she is editor in chief, and also shared it on Tiktok.

“There’s all of those crazy things on the package that say you might have a blood clot or a heart attack or death, and you’re just like whatever. You don’t actually think that that’s going to happen,” Grimaldi said in an interview, noting that her doctor never discussed potential side effects with her.

The Food and Drug Administra­tion points out that the risk of developing blood clots from using birth — control pills — 3 to 9 women out of 10,000 who are on the pill — remains lower than the risk of developing blood clots in pregnancy and in the postpartum period. Doctors note that Opill, the over — the — counter pill that will soon be available in stores and online, contains only progestin — meaning it does not have the blood clot risk of estrogen — containing pills.

The algorithms behind Tiktok, Youtube and Instagram are designed to surface content similar to what viewers have already watched, which experts say leads viewersto believe that more people suffer complicati­ons than in reality.

Jenny Wu, an OB/GYN resident at Duke University, noticed that her Gen Zpatients were turning away from IUDS at higher ratesthan her millennial patients — and were referencin­g Tiktoks about the pain of IUD insertion. So she analyzed the 100 most popular Tiktok videos about IUDS and found that a surprising­ly high proportion — almost 40 percent — were negative.

“It’s changed how I practice,” she said. She now routinely offers patients a variety of pain management options including anti — inflammato­ry drugs, a lidocaine injection into the cervix, or anti — anxiety medication.

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