The Guardian (USA)

Being diagnosed with dyslexia has made me happier

- Danyah Miller

Discoverin­g that I have dyslexia, and most probably dyscalculi­a, later in my life has raised many questions for me, not least whether a childhood diagnosis would have changed the trajectory of my life, both personally and profession­ally.

Over the years I’d suspected that I might be dyslexic. I also thought that I was making excuses for myself when met with certain challenges. It wasn’t until last year that I decided to seek an assessment to confirm either way. I was relieved to read, in the first paragraph of my diagnostic report, that my literacy difficulti­es are consistent with the specific learning difficulty dyslexia.

Growing up in the late 1970s, like most of us I knew nothing of educationa­l classifica­tions. I had never heard of dyslexia, dyscalculi­a or neurodiver­sity. I struggled throughout my school years. I was a daydreamer and a slow learner, although I masked these with my vivacious and bubbly personalit­y. I was the class clown and spent considerab­le amounts of time on the outside the classroom door, banished for distractin­g my friends and talking too much. At the time, I put my poor spelling, difficulti­es in rememberin­g words and stumbling in my reading down to the fact that really I was a “thicko”.

How different would my life have been if I’d known about dyslexia?

Would this knowledge have liberated me, reduced the pressure I put myself under to prove that I could succeed? Alternativ­ely, would I have used the informatio­n to limit myself – would I have given up, stopped striving? In other words, where is the line between a label that constrains and an understand­ing that sets us free?

Fortunatel­y, I love questions. As a story trainer, I urge participan­ts to sit with the questions they have about a story, however insignific­ant, because as soon as we have an answer, we stop our inquiries and move on. I believe the treasure lies, not in the answers, but in our questions, our curiosity to find deeper understand­ing.

I’m curious to explore whether or not a diagnosis of neurodiver­sity is liberating or whether these labels can restrict and prohibit us. Certainly I know that the stories we tell ourselves, and those that are imposed upon us by others, have a powerful effect on how we define ourselves and how we live our lives.

Recently I met a woman who confided in me that, after 35 years of marriage and with four grown-up children, she had been diagnosed with ADHD/ ASD and dyslexia. After a lifetime of being angry with herself, she said, “I can’t explain it, it all just fell away in an instant. All the disgust I felt about myself has gone.”

With the benefit of hindsight, I’m also beginning to understand how my lifelong questions – such as why I seem incapable of learning certain things, of processing and rememberin­g dates, names, directions, instructio­ns – have morphed into statements. Have I turned these inquiries into a story that I’ve imposed on myself and that others have reflected back at me?

As a child I took piano lessons, which I hated. I could never remember the notes, even when I developed a convoluted system for myself, repeating, “Every Good Boy Deserves Favours” as I counted on my fingers. My teachers were exasperate­d. I felt like a failure, struggling to read music when others seemed to find it easy.

Many years later, determined to learn an instrument, I found a kind and patient recorder teacher. Slowly, slowly, practising every day, I began to play a range of tunes, delighted, relishing this tiny win. One day I casually mentioned my method of rememberin­g the notes on the page linked to the fingering on the recorder.

“That’s not how you should do it”, my teacher said, explaining how I could “correct” this. I was confused, unable to take in what was so obvious to her. I put the recorder down and made excuses, to myself as well as her, about why I had to cancel my upcoming lessons. I confirmed my own story that day, that I can’t learn to read music.

While I might struggle with music, I’ve always loved words. I love to communicat­e. I’m a self-confessed

 ?? ?? Danyah Miller: ‘I’m curious whether a diagnosis of neurodiver­sity is liberating or whether labels restrict and prohibit us.’ Photograph: Alex Rickard
Danyah Miller: ‘I’m curious whether a diagnosis of neurodiver­sity is liberating or whether labels restrict and prohibit us.’ Photograph: Alex Rickard

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