The Mercury News

Henrietta Lacks estate sues company using her ‘stolen’ cells

- By Michael Kunzelman

COLLEGE PARK, MD. >> The estate of Henrietta Lacks sued a biotechnol­ogy company on Monday, accusing it of selling cells that doctors at Johns Hopkins Hospital took from the Black woman in 1951 without her knowledge or consent as part of “a racially unjust medical system.”

Tissue taken from the woman’s tumor before she died of cervical cancer became the first human cells to be successful­ly cloned. Reproduced infinitely ever since, HeLa cells have become a cornerston­e of modern medicine, enabling countless scientific and medical innovation­s, including the developmen­t of the polio vaccine, genetic mapping and even COVID-19 vaccines.

Lacks’ cells were harvested and developed long before the advent of consent procedures used in medicine and scientific research today, but lawyers for her family say Thermo Fisher Scientific Inc., of Waltham, Massachuse­tts, has continued to commercial­ize the results well after the origins of the HeLa cell line became well known.

“It is outrageous that this company would think that they have intellectu­al rights property to their grandmothe­r’s cells. Why is it they have intellectu­al rights to her cells and can benefit billions of dollars when her family, her flesh and blood, her Black children, get nothing?” one of the family’s attorneys, Ben Crump, said Monday at a news conference outside the federal courthouse in Baltimore.

Johns Hopkins said it never sold or profited from the cell lines, but many companies have patented ways of using them. Crump said these distributo­rs have made billions from the genetic material “stolen” from Lacks’ body.

Another family attorney, Christophe­r Seeger, hinted at related claims against other companies.

Thermo Fisher Scientific “shouldn’t feel too alone because they’re going to have a lot of company soon,” Seeger said.

The lawsuit asks the court to order Thermo Fisher Scientific to “disgorge the full amount of its net profits obtained by commercial­izing the HeLa cell line to the Estate of Henrietta Lacks.” It also wants Thermo Fisher Scientific to be permanentl­y enjoined from using HeLa cells without the estate’s permission.

HeLa cells were discovered to have unique properties. While most cell samples died shortly after being removed from the body, her cells survived and thrived in laboratori­es. This exceptiona­l quality made it possible to cultivate her cells indefinite­ly — they became known as the first immortaliz­ed human cell line — making it possible for scientists anywhere to reproduce studies using identical cells.

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