A drive to have patience
Finding happiness in ‘fetching’ a glass of cold water is the true test
When I was pregnant with Matthew, dear Lord, about 18 years ago, and we received the diagnosis of Down syndrome, the first thing I felt was incredible fear. We were both scared, my husband and me. Scared of how that extra chromosome would affect our baby, scared of how it would affect our lives and the lives of our two older children and scared, well, just plain scared.
I tried to educate myself as much as my brain would allow, but, sometimes, the more I read, the worse I felt. At some points I would just try to find the good in what seemed to be a nightmare. So, I thought, since Matthew will be developmentally delayed, we’ll experience his life at a slower pace and we’ll be able to savor and celebrate each milestone. And since he’ll have that extra chromosome, he’ll be happy and loving all the time. At least that’s what people told me – children with Down syndrome are always so happy and loving….
OK, so, now let’s fast-forward 17 years. We’ll skip over that first year of medically-induced stress and pass over those incredibly cute toddler years and the monumental first years of real school where every step forward was a huge win.
Yes, let’s skip over all those years, remembering that I believed we would be raising a child who was loving and happy — 24-7. It was the
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