Yas­meen Sa­far­galiyeva

Fash­ion De­signer

ANATOMICÁ (English) - - Special - Three chil­dren: Al­i­dar, Arif, Amelia

I am glad that now we are grow­ing up our

son as the most or­di­nary boy.

When Al­i­dar was only 24 hours old, my hus­band was in­formed of the sus­pected pres­ence of Down syn­drome, that needed a ge­net­ics ex­am­i­na­tion. I re­fused to be­lieve, but the test re­sults con­firmed the di­ag­no­sis. It was ter­ri­ble. We had no idea what to do.

On the twen­ti­eth day we were in­formed about car­diac anom­aly. On the ad­vice of friends, we chose a clinic in In­dia. Af­ter we re­al­ized that we were wrong.

The sur­geon was with bad rep­u­ta­tion.

I re­mem­ber the lan­guage bar­rier, poor con­di­tions, com­ments from med­i­cal staff that there are few chances for re­cov­ery, con­vul­sions as a re­sult of in­cor­rect trans­la­tion of doc­tor's ap­point­ments.

Cor­rec­tion on heart we have had with the other sur­geon. I will never for­get my son's eyes on the day af­ter the sec­ond surgery. Be­tween in­ter­ven­tions he didn't want to eat, he didn't feel the taste. Now He is a lit­tle gourmet.

We over­come. De­spite Al­i­dar is tak­ing medicine that slows his de­vel­op­ment. I am glad that now we are grow­ing up our son as the most or­di­nary boy.

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