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ArticleHopes are dashed in battle for teen’s vital treat­ment

A 19-year-old woman liv­ing with Friedreich’s ataxia has described a recom­mend­a­tion against fund­ing the first treat­ment approved to slow the pro­gres­sion of the con­di­tion as “dev­ast­at­ing news”, as her fam­ily vowed to con­tinue fight­ing...

ArticleBelle of the ball: Debs sea­son kicks off across Garden County

Article‘When you’re liv­ing with Friedreich’s

A 19-year-old Wick­low woman liv­ing with Friedreich’s ataxia has described a recom­mend­a­tion against fund­ing the first treat­ment approved to slow the pro­gres­sion of the con­di­tion as “dev­ast­at­ing news”, as her fam­ily vowed to con­tinue...

ArticleAtaxia, every delay means los­ing more’

to do the things I enjoy.” While the wheel­chair is the most vis­ible sign of her con­di­tion, Isa­bella said Friedreich’s ataxia affects far more than mobil­ity, with many of its chal­lenges not imme­di­ately appar­ent. She also believes people may...