Good news for Mor­gan

Annapolis Valley Register - - NEWS -

Com­pas­sion­ate Care

Sarah Yet­man hopes the Eli Lilly pro­gram goes ahead and Jor­dan is ac­cepted.

“It does seem like this com­pas­sion­ate care pro­gram has only be­come avail­able be­cause of the com­mu­nity,” Sarah said. “Eli Lilly heard the cries of An­napo­lis and Digby on Jor­dan’s be­half and they lis­tened. They ap­proached Jor­dan’s on­col­o­gist to start the ap­pli­ca­tion process. So al­though there is the pos­si­bil­ity he could be de­nied, I’m op­ti­mistic that this will turn out in his favour. The main thing is, our fundrais­ing al­lowed Jor­dan to start chemo now, not months down the road.”

Sarah said that tim­ing of get­ting the Lartruvo treat­ment started was very im­por­tant.

“In Jor­dan’s sit­u­a­tion, with his di­ag­no­sis, we didn’t have months or even weeks to wait for a com­pas­sion­ate care fund that didn’t even ex­ist at the time,” Sarah said. “Had we not come to­gether as a com­mu­nity I would bet Eli Lilly would never have stepped up. Who knows how many Cana­dian lives this has saved. We should be proud as a com­mu­nity of the change we have made, not just for Jor­dan, but for all those peo­ple who can now ben­e­fit from Lartruvo. Jor­dan has even said he can feel a pos­i­tive change in his mass; and that’s after just two of 16 in­jec­tions. That’s amaz­ing. Ab­so­lutely amaz­ing.”

Jor­dan had noth­ing but high praise for his lo­cal MLA Gor­don Wil­son.

“From the be­gin­ning Gor­don was ac­ces­si­ble, pro­fes­sional, and per­sis­tent,” Jor­dan said. “He kept me in­formed of his cor­re­spon­dence and ef­forts with the drug com­pany. And he did an ex­cel­lent job com­mu­ni­cat­ing and por­tray­ing to them the scale of the sup­port I was re­ceiv­ing on a provin­cial level.”

Happy End­ing

“This kind of happy end­ing isn’t al­ways the case and I am truly grate­ful of ev­ery­one’s ef­forts,” Jor­dan wrote. “I hope those in a po­si­tion to rec­og­nize the faults in the ex­ist­ing sys­tem make notes and be­gin work to en­sure the health­care Cana­di­ans are get­ting, is the health care Cana­di­ans think they are get­ting. After all, it’s a sys­tem. It can work.”

Garth Lescau­dron or­gan­ised the fundraiser for Jor­dan at Still Fired and was more than pleased by the re­sponse from the com­mu­nity.

“I feel like we had a very suc­cess­ful evening,” said Lescau­dron. “I couldn’t have asked for more. We made an amaz­ing amount of money from the com­mu­ni­ties. I couldn’t think of a bet­ter cause than help­ing out some­body in our com­mu­nity it­self. A young per­son brought up within this com­mu­nity. I couldn’t think of any­thing bet­ter.”

Newell is­sued a chal­lenge a few weeks ago that had peo­ple do­nat­ing $20 each to see him at­tach a live lob­ster to his hand by both claws. In just two weeks he raised more than $6,000.

For Jor­dan, he’s not afraid to talk about his ex­pe­ri­ence and the health-care sys­tem.

“I look for­ward to stay­ing healthy and dis­cussing my health­care ex­pe­ri­ences with any­one in­ter­ested,” he said. “And learn­ing more about other peo­ple’s strug­gles as well. I know I’m not the only one nav­i­gat­ing a two-tier health-care sys­tem.”

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