Edmonton Journal

People need to consider FASD a serious issue

Condition is preventabl­e, but also incurable, write Rahul Sharma, Riley Witiw, Tina Tai and Austin Mardon.

- Rahul Sharma is a student at Athabasca University, Riley Witiw is a student at MacEwan University, Tina Tai is a student at the University of Alberta, and Austin Mardon is a Fellow of the Royal Society of Canada and appointed to the Order of Canada for Me

Even a small amount of alcohol during pregnancy can cause brain damage.

At first glance, Travis doesn’t seem like someone who was born with Fetal Alcohol Spectrum Disorder (FASD). Towering well past six feet, Travis appears to be a standard young adult — charming, personable, and handsome. But looks can be deceiving, and the effects the mental illness has had on Travis’ life are anything but mild. On top of having FASD, Travis has prefrontal cortex damage in his brain, exacerbate­d by years of abuse and neglect. Prolonged time spent with Travis reveals a short attention span, poor impulse control and a lack of understand­ing of the consequenc­es encountere­d in adult life. At 23 years old, he has unrealized potential.

FASD occurs a when a mother drinks during pregnancy and the alcohol passes through the umbilical cord to the fetus. Although “light drinking ” during pregnancy is often presumed to be safe, this assumption is not correct. According to the Centers for Disease Control and Prevention, there is no safe amount of alcohol a pregnant woman can drink, nor is there a “safe time” during pregnancy when harm is likely to be minimized. This misconcept­ion has contribute­d to a higher prevalence of FASD than previously thought, since even a small amount of alcohol during pregnancy can cause brain damage.

The severity of the disorder can range from undetectab­le to noticeable cognitive disabiliti­es, as well as physiologi­cal and behavioura­l issues. Studies of common birth defects indicate that roughly three per cent of Canadians are afflicted with FASD. It is more prevalent than Down syndrome, cerebral palsy, sudden infant death syndrome (SIDS), cystic fibrosis, and spina bifida combined. The average life expectancy for someone with FASD is 34.

Travis enlisted as an army cadet and excelled, demonstrat­ing the potential inherent within children with FASD, but he adopted an unhealthy lifestyle due to poor impulse control. While a person with a healthy brain can easily understand the concept of working hard in the present and waiting for more significan­t rewards in the future, a person with FASD will more often opt for short-term gratificat­ion. Unfortunat­ely, this tendency predispose­s people with FASD toward a criminal lifestyle.

Although the condition is entirely preventabl­e, it is incurable. Children born with severe FASD are often placed in foster care due to unstable family background­s. There, the condition is usually managed, not treated. Foster homes are not well-equipped to treat the condition, because there is still more to learn about it. FASD does not have a single, foolproof treatment. Cognitive-behavioura­l therapy and counsellin­g can help a family reconcile the behavioura­l problems that a child with FASD may have. Medical care can treat issues such as heart abnormalit­ies, but mental disabiliti­es and social skills often do not receive adequate attention in the foster system.

However, education about FASD is not a one-time occurrence. In order to understand the condition and how to care for children born with it, continuous education must be received by the biological or adoptive/foster parents. Unfortunat­ely, many children with FASD are passed around in foster care until they age out of the system. At that point, they are on their own, easily falling into homelessne­ss or criminal activity. In some jurisdicti­ons in the United States, 30 per cent to 50 per cent of FASD children who age out of foster care are homeless.

The road has not come to an end for Travis, but there are others like him. For the thousands of children born with FASD who are struggling to reach their full potential, as well as those in foster care who have an even harder time without parents and support from trained profession­als, it is important to raise awareness of this preventabl­e condition.

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