BENEFIT CONCERT IN MEMORY OF THE BUTTERFLY CHILD
Jonathan Pitre inspired people all over the world with his courage and optimism in the face of a terrible disease. Now Russell’s “Butterfly Child” has inspired a benefit concert in his memory to help others like him.
Russell Township’s own award-winning star on the Canadian music scene, Tara Shannon, is coming home to organize and host this Thursday’s Holiday Benefit Concert in Memory of Butterfly Child Ambassador Jonathan Pitre. Shannon spent time with young Jonathan during his hospital stays for treatment of epidermolysis bullosa (EB), a genetic skin disorder.
“I’ve been doing a benefit concert for the past five years now,” stated Shannon in an email news release to media. “This year we thought bringing the event to Jonathan’s hometown would be a nice way to engage the community in his memory. And it’s a wonderful way to showcase the talent in my backyard. Jonny loved to sing, and so I know he will be with us. I am excited about the event and I look forward to seeing many familiar faces out there.”
“Jonathan would be so proud and happy to know that we are all coming together here in his hometown,” stated Tina Boileau, mother of Jonathan Pitre, and president of DEBRA Canada, an organization dedicated to raising funds and public awareness for EB research and treatment. “Jonathan loved the Christmas season, he loved gatherings and was passionate about helping others with EB. He wanted to ensure that the wave of awareness continued, no matter what, and this event is helping to do just that.”
Jonathan Pitre died April 4, 2018, after complications related to stem cell treatment he was undergoing in hope of improving his ability to deal with EB, an aggressive skin-blistering condition that is described as “one of the most painful diseases known to medicine.” EB leaves the skin of the person affected, as fragile and delicate as a butterfly’s wing, subject to painful blistering and bruising at the slightest pressure. He became a local celebrity and also became known across Canada and abroad for his courage in dealing with his condition.
The fundraising benefit concert in his memory is December 12, 7 p.m., at the Embrun Community Centre. Information on tickets and reservations is at the DEBRA website at http://bit.ly/2019HolidayBenef itConcertTickets. Donations at the door or to the website are also appreciated.