‘Wonder’ star meets ‘muses’ with facial differences
TORONTO Vancouver child actor Jacob Tremblay was in Toronto on Monday for a special screening of his new film “Wonder” about a child with facial differences, sharing it with his muses — a group of young patients who live that reality every day and helped him prepare for his role.
The 11-year-old plays Auggie Pullman, a child with Treacher Collins syndrome, a rare congenital condition in which babies are born with underdeveloped facial bones and often little or no external ears.
Based on R.J. Palacio’s 2012 novel, “Wonder” follows the joys and torments experienced by Auggie as he tries to navigate the fifth grade, his first foray into public schooling after having been taught at home by his parents (played by Julia Roberts and Owen Wilson).
On Monday, Tremblay walked the blue carpet — “Wonder’s official colour” — at Sick Kids Hospital, along with two of his co-stars, 10-year-old Millie Davis of Toronto, who plays his friend Summer, and 12-year-old American actor Kyle Breitkopf, who took on the role of the bully Miles in the film.
Joining the actors on the carpet were the patients whom Tremblay had reached out to while studying for the role of Auggie. For the film, he wore a heavy facial prosthetic, a wig and contact lenses.
“I made friends and I also asked them if they could send me letters of any tips or experiences or stories they had,” Tremblay told The Canadian Press.
One of those patients is Katie Atkinson, who was born with Treacher Collins and has had several surgeries since infancy, including receiving cheekbone and chin implants about a month ago.
The 19-year-old nursing student at Mohawk College in Hamilton recalled being teased and bullied as a child because of her facial differences, including the fact she had “little ears.”
“Yeah, I definitely was and I still struggle,” Atkinson admitted in an interview before the event, saying it can be extremely uncomfortable when strangers stare at her, although that kind of behaviour has lessened somewhat as her surgeries have progressed.
“But when I was a child, my facial differences were a lot more prominent . ... So a lot of times kids wouldn’t want to play with me. They would call me weird or ugly or an alien.”
She related one incident in which her father had taken her into a coffee shop and the barista behind the counter — not realizing the child in the stroller was his — exclaimed “Oh, look at that really ugly baby. They should put it out of its misery.”
It was such experiences that Atkinson related in her letter to Tremblay to give him the flavour of everyday life for people whose looks are outside the so-called norm.
“When Jacob reached out to us and asked for our letters and wanted to meet with us, that was just so incredible,” Atkinson said. “It really showed his character and how much he cared about having our stories really come through his acting, to make it the most realistic and the most profound for us.”
Farah Sheikh, a social worker in the Cleft Lip and Palate, and Craniofacial programs at Sick Kids, said the hospital receives about 130 new referrals from across the country each year, most commonly for children with a cleft lip or palate. The hospital currently follows about 5,000 patients with various facial differences.
The programs provide team-based medical and psychosocial support to these children and their families, from diagnosis through to age 22.