National Post (National Edition)
Custom-made fun for disabled kids
JACKSONVILLE, FLA. • Because of her cerebral palsy, four-year-old Scarlett Wilgis has trouble opening her hands and can’t get around without help. Her parents have scoured store shelves and websites for toys for her but have mostly been disappointed.
“Finding the toys at Walmart or Target, they’re pretty much non-existent,” says mom Dezaraye Wilgis, sitting with Scarlett at their home in St. Augustine, Fla. “Or if you get them through a medical supplier they’re extremely expensive.”
While major toymakers now sell dolls with wheelchairs and crutches, those designed to be used by children with severe disabilities are still difficult, if not impossible, to find. Because the toys have to be customized for each child, the cost can skyrocket.
This conundrum gave two University of North Florida professors an idea: mix engineering and physical therapy students in a lab with the goal of converting toys from store shelves into custom-made fun for disabled children. The Adaptive Toy Project is now in its third year and has drawn a five-year grant from the National Institutes of Health. It is helping families such as Scarlett’s while giving the students a dose of community service and real-world experience that will stick with them long after graduation.
Dr. Alison Cernich, a neuropsychologist and director at the NIH’s Eunice Kennedy Shriver National Institute of Child Health and Human Development, said the agency funded the program because it forces students from different fields to collaborate and solve a problem in the community.
“This program is getting students in the early phases of their training thinking about ordinary objects — toys — and how to adapt those toys so that children with limitations can use and play with them like children without limitations,” she says.
On a recent day, the school’s small lab buzzed with the sound of tools and chatter as students customized cars for their new owners. Chris Martin, an electrical engineering student, had removed the hood of Scarlett’s car, exposing its wires. A large push-button replaced the steering, and light sensors mounted underneath the car will allow it to follow a line of tape along the floor whenever Scarlett hits the button. Now, Scarlett’s parents can design routes for the car with tape or use a remote-control mode for family walks.
When Martin first met Scarlett’s mother, “she actually cried, and it just made me want to work harder,” Martin says.
The cars retail between US$250 and US$500; the customization makes them worth well over US$1,000. The families, about 18 so far, get the cars free.
Mary Lundy, a UNF professor of physical therapy who started the Adaptive Toy Project with an engineering colleague, says the students meet with families, and go to therapy appointments and schools.
“Engineering students teach the physical therapy students how to modify basic electronics ... and in the process engineers learn how to do people-centred designs, and how to look at their clients differently,” Lundy says.
Dr. Peter Rosenbaum, a professor of pediatrics at McMaster University in Hamilton, Ont., says his field is increasingly focusing on “augmented mobility,” to give kids a way to move around so they can be more independent.
“We can’t fix them,” Rosenbaum says. “What we can do instead is say, ‘What would a child at this age and stage of development be doing if they didn’t have their impairment? How can we give them those experiences?’ This changes the perspectives of everyone around her, and her perspective of herself.”
ENGINEERING STUDENTS TEACH THE PHYSICAL THERAPY STUDENTS HOW TO MODIFY BASIC ELECTRONICS ... AND IN THE PROCESS ENGINEERS LEARN HOW TO DO PEOPLE-CENTRED DESIGNS, AND HOW TO LOOK AT THEIR CLIENTS DIFFERENTLY. — PROFESSOR MARY LUNDY