The Guardian (Charlottetown)

A glimpse of autism

Are TV shows featuring characters with ASD accurate?

-

Characters with autism are increasing­ly finding prominence in film and television, most recently in the new TV network offering “The Good Doctor” and “Atypical,” which debuted in August on the streaming service Netflix.

Such series may provide viewers with a glimpse into the world of those with autism spectrum disorder, or ASD, but just how accurate and representa­tive are these characters?

And, more importantl­y, how has the autism community reacted to such portrayals?

“It’s been an interestin­g mix,” concedes Esther Rhee, national program director at Autism Speaks Canada, an advocacy organizati­on that funds research into neurologic­al conditions.

“We’ve had feedback from individual­s on the spectrum, from family members who say ‘I completely relate to some of these story lines,’ and we have others that feel that they’re not accurate reflection­s,” Rhee says.

“So there’s no one response to it.”

While the shows’ creators may have imbued their characters with some features of autism, Rhee says their main purpose is to be entertaini­ng, not educationa­l.

“And so we can’t have the expectatio­ns that people who don’t know a lot about autism are going to view each episode and then all of a sudden have an understand­ing of what’s happening in the autism community.”

Still, Rhee sees the inclusion of characters with ASD in film, television and on stage as generally positive: “These shows provide a starting point ... and whether people agree or they disagree with the content, it’s still an opportunit­y to start having a discussion about autism.”

“The Good Doctor” has created some buzz on blogs and social media. Lead character Shaun Murphy (played by Freddie Highmore) is a newly minted pediatric surgeon with autism who’s hired by a big-city hospital over the objections of many of its senior medical staff.

Murphy is socially awkward but brilliant, described by the show’s producers as a savant, though that term and “highfuncti­oning” have fallen out of favour with many within the ASD community. He’s uneasy making eye contact and can be conversati­onally stilted stereotypi­cal hallmarks of the condition, but ones not universall­y shared by all those on the spectrum.

“Atypical” focuses on Sam Gardner (played by Keir Gilchrist), an 18-year-old with ASD obsessed with all things Antarctica and subject to sensory overload from excessive noise and light, who’s intent on having a “normal” teenaged life.

“The difficult thing is that a lot of these characters, they’re kind of like checklist characters,” says Michael McCreary, who was diagnosed at age five with Asperger’s syndrome, a condition that once had its own classifica­tion but was absorbed into the overall ASD category in the DSM-5, the latest edition of psychiatry’s diagnostic bible.

“Someone says ‘Oh, what does autism look like?’ and you go, ‘OK, here are 20 or so talking points, make sure you hit all of them,”’ says the 21-year-old stand-up comic from Orangevill­e, Ont.

“And now you’re no longer writing a character, you’re trying to meet a quota.”

Dr. Melanie Penner, a developmen­tal pediatrici­an in the Autism Research Centre at Holland Bloorview Kids Rehabilita­tion Hospital in Toronto, concurs that reactions from individual­s with ASD and their families to shows like “The Good Doctor” have been somewhat mixed, though generally positive.

“I think what the autism community are often looking for ... (is) they do care that the representa­tion is accurate - and it’s accurate not just in what it’s like to live with autism, but also how the world reacts to someone with autism.”

For instance, more than 80 per cent of adults with autism are unemployed, and among those with jobs, only six per cent have competitiv­e wages and competitiv­e positions compared to their peers, notes Rhee.

While Penner thinks it’s appropriat­e to highlight some of the strengths that autism may confer in some individual­s - Murphy in “The Good Doctor” has almost super-human diagnostic skills, for instance the entertainm­ent industry is “not there yet” when it comes to representi­ng the breadth of people on the spectrum, or showing what it’s like to live with ASD on a day-to-day basis.

“And so no one representa­tion of autism is going to satisfy that diversity. To help that problem, when people are developing these shows, it’s so important to consult with the autism community, both families and people with autism themselves,” she says.

Newspapers in English

Newspapers from Canada