The Standard (St. Catharines)

Conference for parents of disabled kids

- CHERYL CLOCK

Parents of children with disabiliti­es need to talk with each other.

On Saturday they can meet up at the first annual Niagara Children’s Centre parent conference, Exhale: From Surviving to Thriving.

It’s a free networking event for parents and caregivers of children up to age 21, with a physical, developmen­tal or communicat­ive delay.

Keynote speakers are Donna Thomson and Darren Connolly.

Thomson is a parent and author of The Four Walls of My Freedom: Lessons I’ve Learned from a Life of Caregiving.

She is a blogger and family adviser in childhood disability research. She will reflect on a variety of strategies for thinking about strength and resilience that worked with her family, parenting a child with severe cerebral palsy and medical complexity.

Connolly is a parent and president of Ontario Agencies Supporting Individual­s with Special Needs.

He works with London Health Sciences Centre as a family adviser in the Children’s Hospital Paediatric Family Resource Centre.

He will share the story of his son’s journey and how families manage to find a new normal.

There are also workshops on blending mindfulnes­s with a busy life, giving parents who face the challenges of raising a child with disabiliti­es some manageable tools.

And parents can hear a panel discussion on integratin­g recreation and leisure into a care-giving lifestyle.

Sara Pot, parent of two children with disabiliti­es, is the conference moderator. She is also an online support parent for the children’s centre.

The centre recently received a grant from the Ontario Trillium Foundation to help parents connect and fight feelings of loneliness and isolation.

“Resilience and hope are engineered from the connection­s we make with each other,” she says. “When our families are connected and empowered, not only do our children thrive, but so does our region.”

Registrati­on begins at 9:45 a.m. The conference runs 10 a.m. to 3 p.m. at Niagara Children’s Centre.

For more informatio­n on the conference visit the Niagara Children’s Centre, or join its online support group, Niagara Children’s Centre Parent/Primary Caregiver Online Support Group.

 ?? JULIE JOCSAK THE ST. CATHARINES STANDARD FILE PHOTO ?? Sara Pot, a parent of two children with disabiliti­es, will moderate a conference for parents of children with disabiliti­es on Saturday.
JULIE JOCSAK THE ST. CATHARINES STANDARD FILE PHOTO Sara Pot, a parent of two children with disabiliti­es, will moderate a conference for parents of children with disabiliti­es on Saturday.

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