Toronto Star

FOR THE LOVE OF GORD

The Tragically Hip’s farewell tour helped a heartbroke­n nation cope with the news of frontman Gord Downie’s cancer. Now Canadians return the favour, by sharing personal battles with the same condition

- VERITY STEVENSON STAFF REPORTER

It shocked the nation. News that Gord Downie, lead singer of The Tragically Hip, had a rare and terminal brain cancer. Glioblasto­ma. It drew Canadians together and gave a face to a disease doctors say is one of the most aggressive cancers around.

“We have some very tough news to share with you, and we wish it wasn’t so,” The Tragically Hip said on its website. But in the same breath, the band an- nounced the show would go on with one last cross-Canada tour.

It was the band’s swan song. And 12 million Canadians tuned in to watch the final Hip concert in Kingston, Ont.

Vaughn Becker was one of them. He’s also one of several people impacted by glioblasto­ma who shared their stories with the Star. They are Canadians from across the country who have battled this cancer, learned to live with it, died from it.

The brain cancer Gord Downie has, they say, is terminal. But life is terminal. No one knows how long we have. There are the statistics and there is reality. That’s what was in my mind when I entered Rogers Arena, in Vancouver. I had on my blue Tragically Hip shirt, and I was so excited to get to my seat. I didn’t even stop to get a beer or nachos.

The anticipati­on was building as I fumbled my way in the dark to find my place amongst the thousands of fans, every one of whom was standing and cheering. As the concert went on, there were moments where Gord looked straight at me. Like we were connected. I know it’s me just believing that. But here’s the thing, a doctor told me I had the same brain cancer Gord has. Over the years, I have spent time getting to know people who had also been diagnosed with that cancer and it is hard seeing some of them not make it. The prognosis is not good. Glioblasto­ma multiforme (GBM) is a type of brain cancer where 90 per cent die by five years after diagnosis. Gord’s cancer, from what I understand, is in the same part of the brain as mine was. He is receiving the same treatment I received. Same chemo, same radiation. In fact, radiation today is even more accurate in targeting the tumour than when I had it.

But there it is, that’s why I felt connected at the concert. Like we were old buddies. If we met, I would tell Gord that there is no reason he cannot be a long-term survivor. I would also say that during treatment and after, always stay strong, positive and hopeful. Because I’m not dead and I was diagnosed almost 13 years ago.

Back then, though, my head was half bald and I always made sure to wear my version of the Fifty-Mission Cap. After throwing up my chemo pills in my fourth week of treatment, I was taken off chemothera­py as it was causing my white blood cells to drop to a near fatal level. As I sat getting transfusio­ns I had no idea what was next, if treatment was hav- ing any effect at all in shrinking the tumour, or how long I was going to live.

Music was important to me in those early days of treatment. I often played the Hip. “Courage” was something I needed and what I listened to the most. Small confession, when I laid down on the MRI bed, I’d listen to Madonna (sorry, Gord). Of course, treatment, diet and exercise, positive thoughts and prayer, and most importantl­y, family and friends helped to heal me, too. But music healed me in a different way. It touched my brain and soul, inviting it to dance in ways it never had. Those voices include Downie’s. His music helped save me. I’d like to return the favour.

In addition to music, Gord, here are some of the things that helped heal me.

Exercise. I ran my first marathon (and probably my last!) just over a year since diagnosis. I also continued to play hockey and I started cycling. Exercise is very important as it activates the brain. I’m not worried about you though, seeing you bouncing around, jumping and spinning on stage full of energy.

Diet. Early on, I leaned towards a more vegetarian diet, but couldn’t go all the way as no one can say no to my mom’s tasty Mediterran­ean spread. I had a lot of green tea and started making daily smoothies of kale, spinach, turmeric, chia seeds, flax and ginger. Apparently, you enjoy your mom’s orzo with Italian sausage. I hope you’re eating your green, too.

Love. It was clear at the concert that people love you, and I was one of them, sitting in Section 108. Continue to make sure you are with the people you really know and love. Continue to create purpose in your life. For me, it’s through my art, my writing and cancer research. In your way, you are clearly doing this through your art of poetry and song.

Be giving. Give to others, and you will ultimately receive good health. I cannot stress enough how important this is. With each song, with each concert, you are creating this reality.

Even if the cancer recurs, with survival statistics that are even worse, there is still reason for hope. I did have a recurrence. In fact, a year and a half after my initial diagnosis and treatment, the MRI showed that the tumour had actually doubled in size. As a cancer researcher (I know, if it isn’t irony, it’s something), I knew that the odds were against me. My hope was strong and I didn’t feel that I was ready to leave. I held on to the belief that chemo would work again. And sure enough, it did.

The concert was near the end. The Hip had all just left the stage. Except Gord. He remained, and took his time walking slowly around the stage, looking at all his fans. It seemed as if he made sure he connected with everyone in the arena. I imagined that he winked at me. My level of appreciati­on and wonder in what Gord was doing on stage, was starting to hit me. I was reminded that despite set backs, it’s up to us to decide that life can continue with vigour and passion. With each song, Gord had driven this point home. The crowd waved the light from their cellphones and the roaring cheers got louder and louder. Everyone was giving their love and hope — Fully. Completely.

 ?? JAMES WEST FOR THE TORONTO STAR ?? Katelyn Gilbert, 27, of Zealand, N.B., has glioblasto­ma multiforme, the same type of rare brain tumour The Tragically Hip’s Gord Downie (shown on her tablet) was recently diagnosed with. Gilbert says she feels “extremely lucky” for her stable condition.
JAMES WEST FOR THE TORONTO STAR Katelyn Gilbert, 27, of Zealand, N.B., has glioblasto­ma multiforme, the same type of rare brain tumour The Tragically Hip’s Gord Downie (shown on her tablet) was recently diagnosed with. Gilbert says she feels “extremely lucky” for her stable condition.
 ??  ?? Joe Schwarcz
Joe Schwarcz
 ??  ?? Angus MacAlliste­r
Angus MacAlliste­r
 ??  ?? Yaron Butterfiel­d
Yaron Butterfiel­d
 ??  ?? Pat Murdock
Pat Murdock
 ?? J.EFF VINNICK FOR THE TORONTO STAR ?? Yaron Butterfiel­d was diagnosed with a glioblasto­ma briain tumour almost 13 years ago. He’s a rare long-term survivor.
J.EFF VINNICK FOR THE TORONTO STAR Yaron Butterfiel­d was diagnosed with a glioblasto­ma briain tumour almost 13 years ago. He’s a rare long-term survivor.

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