Scleroderma society to improve awareness with Kentville session
KENTVILLE - The Scleroderma Society of Nova Scotia is holding an information event, which is taking place in Kentville on Oct. 1.
Jason Doucette, president of the society, describes it as a “chronic autoimmune disease, also known as ‘ hard skin’.”
The body’s immune system attacks its own tissues, which may lead to serious damage of internal organs.
“The disease, which affects a limited number of patients in Nova Scotia, is life-altering and potentially life- threatening. The disease is more predomin- ant among women aged 30 to 50, and to date, there is no cure,” he said.
The mission of the society is to provide support to those living with scleroderma and to increase awareness of the disease. - fects so few people, it’s been noted that there is very little knowledge regarding the disease or how it impacts those living with it,” Doucette suggested.
The Kentville session is aimed at providing education, as well as to share patient experience. The society will also seek feedback on how to “better serve the needs of patients and their loved ones, who often feel alone, scared and lacking support.”
Registration is not required and everyone is welcome to participate from 2-4 p.m. at the Kentville Recreation Centre.