China Daily (Hong Kong)

Volunteers provide solace to former patients, work to reduce stigma associated with disease

- By FENG ZHIWEI in Changsha and LIANG SHUANG in Beijing

Leprosy, though curable using modern medication, has cast a long shadow over China. Thousands of former patients have been left disfigured by the disease, while enduring social stigma means hundreds still live in colonies, isolated from the rest of society.

Tao Ruqin, a student at the Hunan University of Commerce in Changsha, Hunan province, has spent much of her spare time over the past two years volunteeri­ng in these colonies.

She began as a freshman in July 2014, after being inspired by a presentati­on given by a volunteer associatio­n called “Home Working Camp”.

The associatio­n took her and her fellow volunteers to Longjing Hill in Zhuzhou, Hunan — a designated “leprosy recovery village” that is six hours away from Changsha by train and bus, followed by a 40-minute hike through the mountains.

The village consists of three buildings, housing more than 20 people afflicted with leprosy. They are all age 60 or older and are no longer contagious, yet most live with some sort of disfigurem­ent.

Aside from the nurses who care for them, they have no one else for company.

“I felt like the village was very quiet and lacked vitality. Some of the sufferers, such as those who are paralyzed, rely entirely on the village head,” Tao said.

“I was concerned that because we are able-bodied we might upset them, but it turned out that they were actually afraid of scaring us. They would quickly pull their deformed hands away after we shook them, but eventually we became acquainted and any unpleasant­ness went away.”

Working with her fellow volunteers, Tao laid cement to make the village’s road less slippery on rainy days. The villagers were thankful, but did not believe her when she said she would return to volunteer again during Spring Festival.

“One grandmothe­r surnamed Zeng was very doubtful, she assumed we were another bunch of college students just looking for life experience­s,” Tao said.

“She found it hard to believe

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