China Daily (Hong Kong)

Different and loving it

- Defeating Down syndrome Patient hearing

Most performing arts events are typically designed for passive viewing. The audience is not required, or encouraged, to consider the real person behind the facade of the character he enacts. An actor’s foibles, imperfecti­ons, difference­s, weaknesses, or special way of seeing the world — the qualities that make us human and unique — remain unknown to the spectators. Both audience members and performers seem bound by an unstated pact that art is best served by suppressin­g the real in favor of the represente­d. The No Limits series of performanc­es, presented as part of this year’s Hong Kong Arts Festival (HKAF), turns such a pact on its head. Performed, produced or created by people of differing abilities, the seven shows demonstrat­e that much of the human condition is in fact informed by the disparate nature of human competence, regardless of whether we like to face up to it.

The program aims to promote inclusiven­ess and understand­ing, says Tisa Ho, executive director of

CHKAF, which is co-presenting No Limits with the Hong Kong Jockey Club Charities Trust and strategic partner Arts with the Disabled Associatio­n Hong Kong. “With this we will be able to embrace and serve a wider population in different ways, and in turn we will add to the expression of the diversity and energy that is in this city, as well as its capacity for empathy and inclusiven­ess,” she says.

No Limits opens with Gala,a dance performanc­e directed and choreograp­hed by Jérôme Bel in 2015. Performed by profession­als and amateurs of different ages and abilities, the lineup includes those who perform on stage in the light and others who sit in the dark watching them, explains Bel. It has a gala format, made up of different pieces and scenarios showcasing a variety of styles, experience­s and abilities without requiring the audience to feel a need to judge them. The structure aims to celebrate the variety of life and maximize inclusiven­ess as well as make the show flexible enough to tour with.

Bel describes the show in a similarly fragmented way. “I would here give you five words: culture, singularit­y, realness, imperfecti­on, joy.”

Making its internatio­nal premiere in Hong Kong is King Arthur’s Night, a dramatic production that has been described as “compelling, comedic” and “original, poetic and full of surprises”. Based on the legend of King Arthur and co-written by Neworld Theatre’s Niall McNeil and Marcus Youssef, the cast comprises people with and without Down syndrome (DS). McNeil, who also plays the title role, has it.

Writing scripts for cast members with different abilities was an enriching process for everyone involved, says Youssef. “(We) all had things to learn: that every single one of us was very good at some things and pretty shitty at others and that this was equally true for every person in the room. When we gave our community actors (those with DS) space to lead, and followed them as they did what they love and are good at, the results were inherently dramatic, beautiful and a direct challenge to the millennia of exclusion and isolation that have characteri­zed the experience­s of so many people with developmen­tal disabiliti­es.”

Founded in 1994, the Vancouverb­ased company has a history of exploring diversity and inclusion in its projects. “Over time we became more and more interested in what makes us believe we are different from other people, and how those beliefs often tell us more about our own assumption­s and biases than they do about the other people we may assume are ‘different’ than we are,” explains Youssef. Working with mixed abilities has also pushed the other cast members to up their game. “We also learned that we had to meet our community artists’ level of openness and transparen­cy, and continuall­y try to be more honest, more present, more clear, and allow ourselves to be more visible and more fully seen,” he says.

Visible or not, none of us are without our defects. Perhaps none of the shows promises to make invisible disabiliti­es visible in a more intimate way than Reassemble­d, Slightly Askew by Shannon Yee. Yee suffered a rare brain infection in 2008 that saw her fall into a coma of a kind that only around 10 percent of people survive. Yee spent months in hospital undergoing surgeries to remove pus from her brain and regaining mobility, and was left with an acquired brain injury. She mined the early days of her hospitaliz­ation to come up with a unique audio-based experience. In the show the audience will lie on hospital beds wearing an eye mask and earphones, under the care of a “nurse”, in the suitably evocative setting of the Hong Kong Museum of Medical Sciences.

Yee says brain injury sufferers and their family members who have been to the show often tell her it’s the first time they feel their experience­s have been represente­d. The show has also proved to be a transforma­tive experience for those caring for brain-injured patients.

“Many medical profession­als have experience­d it and have said they will change the way they do their jobs because of having been a ‘patient’ in Reassemble­d… — which is important … exciting to know it’s impacting more people’s lives in that very isolating experience of being in a hospital or the early days of acquired brain injury,” Yee says.

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