Data­base to help fight child­hood leukemia

Shanghai Daily - - METRO - Cai Wen­jun

LO­CAL hos­pi­tals are lead­ing the de­vel­op­ment of a na­tion­wide leukemia data­base for chil­dren.

The data­base, which will be of­fi­cially launched next Satur­day, will in­clude in­for­ma­tion about the pa­tients and their par­ents, med­i­cal records and treat­ment, and de­tail the cost for long-term ad­min­is­tra­tion.

The na­tional health author­ity plans to fin­ish regis­tra­tion of all leukemia pa­tients di­ag­nosed this year by the month end, and reg­is­ter pa­tients di­ag­nosed since 2015 by March next year.

Health of­fi­cials said the data­base is a mile­stone for China’s se­ri­ous disease regis­tra­tion and ad­min­is­tra­tion. It will greatly boost the pre­ven­tion and con­trol of chil­dren’s leukemia by reg­u­lat­ing di­ag­no­sis and treat­ment across the na­tion, while giv­ing guid­ance to pol­icy-mak­ers on cost con­trol and sub­si­dies.

Leukemia is the most preva­lent chil­dren’s can­cer, ac­count­ing for 30 per­cent of pe­di­atric can­cer.

The in­ci­dence of leukemia for chil­dren un­der 15 years old is three to four ev­ery 100,000, which means there are 10,000 new child pa­tients an­nu­ally in China.

“A na­tion­wide leukemia data­base al­lows for bet­ter pa­tient man­age­ment, reg­u­lated treat­ment and drug use, as well as im­proved clin­i­cal ca­pa­bil­ity,” said Jiang Zhongyi, pres­i­dent of Shang­hai Chil­dren’s Med­i­cal Cen­ter.

The cen­ter has de­vel­oped the chil­dren’s leukemia data­base in Shang­hai and helped build the na­tional sys­tem.

“As many treat­ment plans and med­i­ca­tions we use are from Western coun­tries, our own leukemia data­base can help us find treat­ments more suit­able for Chi­nese pa­tients,” he added.

Shang­hai started to set up a chil­dren’s leukemia data­base in 2015. So far, more than 4,200 cases have been reg­is­tered for mon­i­tor­ing as well as re­search on di­ag­no­sis and treat­ment.

The leukemia data­base is also the first non-in­fec­tious disease data­base in the na­tion.

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