Hindustan Times (Jalandhar)

I HAD COVID-19. AND SOCIETY DECIDED TO STIGMATISE ME

- UPENDRA KAUL Upendra Kaul is a cardiologi­st, former president of the Cardiologi­cal Society of India and SAARC Cardiac Society, and a Padma Shri The views expressed are personal

It was the afternoon of June 3 when I got my coronaviru­s disease (Covid19) test report as ”detected “. It was done voluntaril­y so I would not have be quarantine­d at Srinagar airport where I had intended to go for a break.It came as a rude shock and the next step was mandatory home quarantine. I started it at once by moving to a nearby flat to avoid any exposure to relatives who may have been at high-risk.

This quarantine has been a nightmare because of a cascade of events initiated by my neighbours who sent a written complaint to the district magistrate (DM) and Station House Officer of the police station nearby, alleging that I was putting the lives of the residents in grave danger. I could see them taking pictures of me the surroundin­g balconies and CCTV’s footages of mine were also kept as evidence. I got a warning from DM following a First Informatio­n Report (FIR) recorded by the police saying that I shouldn’t move out of the premises until June 16.

It was a very unpleasant experience for me to see children looking frightened when they saw me and even one neighbour showering abuses at me. I started getting abusive WhatsApp messages from them and the resident welfare associatio­n accusing me of being a liar and a threat to them. The maid who used to bring food once a day to my doorstep was set upon by a neighbour and so she stopped coming. The local chemist who used to send medicines after a phone call also refused to send any medication.The garbage collector also declined to pick up the bags. The newspaper vendor stopped giving me newspapers.

Stigma is a global phenomenon and becomes prominent from time to time. Well known examples include Mary Mallon (Typhoid Mary), the asymptomat­ic typhoid carrier who was captured by authoritie­s in early 1900s. The injustice done to African-Americans stigmatise­d for spreading syphilis in early 2000s comes to mind. Misconcept­ions related to HIV-AIDs are in our recent memory. Finally, it was Magic Johnson, the baseball star and a champion of under-privileged youth, whose confession of being HIV-positive helped a great deal in increasing awareness of the disease.

I was reminded of old days when leprosy patients were supposed to carry a bell to inform others to be careful and move away. This stigma is a part of the history of humanity, despite the fact that it is a disease with low communicab­ility. Leprosy patients used to be quarantine­d for life in colonies. Some of them, with physical deformitie­s brought on by the disease, are still seen begging on roads being carried in carts.

In this case, I have seen personal discrimina­tion from close quarters and also numerous media reports on patients and their families being treated as outcasts. There are reports of dead bodies being disowned by their families and crematoriu­ms not accepting them for their last rites. Do individual­s living alone in quarantine for the virus not require even one meal a day? I am fortunate in that I have a separate place of my own. But what about asymptomat­ic persons who do not need hospitalis­ation? Hospitals of Delhi and many other cities are already full of patents who need monitoring and special care.

Are we are making Covid-19 into a sort of disease like leprosy where the stigma has been transferre­d? By now, we know the preventive methods to contain the spread. This stigma needs to be tackled through education and also, in extreme cases, by punishing the perpetrato­rs legally. At the current rate of spread, who knows whether you may be the next person in line to become infected and, then, unfortunat­ely, ostracised.

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