Hindustan Times (Lucknow)

The DNA Profiling Bill has too many loose ends

- The implicatio­ns of creating regional and national level genetic databanks need to be fully understood ELONNAI HICKOK Elonnai Hickok is director, internet governance at the Centre for Internet and Society, Bangalore The views expressed are personal

The first step towards a DNA Profiling Bill was taken in 2007 with the ‘Draft DNA Profiling Bill” by the Centre for DNA Fingerprin­ting and Diagnostic­s. Since then, there has been a 2012, 2015, and a 2016 version of the Bill - the last not available to the public.

In 2013, the Department of Biotechnol­ogy formulated an Expert Committee to deliberate on concerns raised about the Bill and finalise the text. The “Use and Regulation of DNA Based Technology Bill 2017” and the report by the Law Commission is a further evolution of the legislatio­n and dialogue. The 2017 Bill contains a number of improvemen­ts from previous versions yet there are still outstandin­g concerns that remain.

Positive changes in the Bill include provisions for consent, defined instances for deletion of profiles, limitation on purpose of the use of data in the DNA Data Bank, defined instances fo r destructio­n of biological samples, and the ability for an individual to request a re-test of bodily substances if they believe contaminat­ion has occurred.

Despite these changes the Bill still has an overly broad schedule defining instances of when DNA profiling can be used and is missing a number of safeguards that would enable individual rights. These include a right to notificati­on of storage and access to informatio­n on the DNA databank, the right to appeal and challenge storage of DNA samples, and right to access and review personal informatio­n stored on the DNA Data Bank.

It is concerning that the 2017 Bill has left the defining of privacy and security safeguards to regulation — including implementa­tion and sufficienc­y of protection, appropriat­e use and disseminat­ion of DNA informatio­n, accuracy, security and confidenti­ality of DNA informatio­n, timely removal and deletion of obsolete or inaccurate DNA informatio­n, and other steps as necessary. Furthermor­e, though the Law Commission cites the use of the 13 CODIS (Combined DNA Index System) profiling standard as a means to protecting privacy in its report — this standard has yet to find its way in the text of the Bill.

The implicatio­ns of creating regional and national level DNA databanks need to be fully understood and publicly debated. DNA is not foolproof - false matches can take place for multiple reasons. Importantl­y, the usefulness of DNA based technology to a legal system and the impact on individual rights is dependent and reflective of the social, legal, and political environmen­t the technology is used in.

DNA based technology can be a powerful tool for law enforcemen­t, and it is important that a robust process and structure is given to the collection of DNA samples from a crime scene to the laboratory for analysis, to the DNA Bank for storage and comparison, but this structure needs to also be fully cognizant of the rights of individual­s and the potential for misuse of the technology.

As society continues to rapidly become more and more data centric, and that data increasing­ly is a direct extension of the person, it is critical that legislatio­n that is developed has clear protection­s of rights. In addition to amendments to the text of the draft 2017 Bill, this includes enacting a comprehens­ive privacy legislatio­n in the country.

It is worrying that in the conclusion of its report, the Law Commission has referred to whether privacy is an integral part of Article 21 of the Constituti­on as merely “a matter of academic debate.” Privacy is recognised as a fundamenta­l right in many democratic contexts – including many of those reviewed by the Law Commission as examples of contexts with DNA Profiling laws.

Policy needs to evolve past protection­s that are limited to process oriented legal privacy provisions, but instead to protection­s that are comprehens­ive — accounting for process and enabling the individual to control and know how her/ his data is being used and by whom. Other countries have recognised this and are taking important steps to empower the individual. India needs to do the same for its citizens.

THE USEFULNESS OF DNA-BASED TECHNOLOGY TO A LEGAL SYSTEM AND THE IMPACT ON INDIVIDUAL RIGHTS ARE DEPENDENT ON THE ENVIRONMEN­T THE TECHNOLOGY IS USED IN

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