Belfast Telegraph

Se tback for ill baby Charlie’s parents over brain scan procedure

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CHARLIE Gard’s parents have lost a skirmish in their legal battle over the terminally ill baby’s treatment following a court hearing conducted via email.

A judge overseeing the battle has released a written order he made on Saturday after analysing lawyers’ rival emailed arguments.

Mr Justice Francis said the latest “out-of-hours” dispute between the couple and doctors caring for Charlie (right) centred on a new brain scan.

Chris Gard and Connie Yates had agreed “in principle” to further “imaging” being carried out on the 11-month-old boy’s brain prior to medical experts meeting in London during Monday and Tuesday. But the couple said an electroenc­ephalogram (EEG) should be carried out for no longer than 30 minutes, whereas Great Ormond Street Hospital specialist­s said it would have to last at least four hours in order to generate useful data.

Mr Justice Francis ruled in favour of Ormond Street doctors. He said the scan should “be of such duration” as treating clinicians “may advise”.

Charlie’s parents want Mr Justice Francis to rule that their son, who suffers from a rare genetic condition and has brain damage, should be allowed to undergo a therapy trial overseen by a specialist in New York.

Great Ormond Street specialist­s say the therapy is experiment­al and will not help. They say life support treatment should stop.

Charlie’s parents have already lost battles in the High Court, Court of Appeal and Supreme Court in London. They have also failed to persuade European Court of Human Rights judges to intervene. But the couple say there is new evidence and want Mr Justice Francis, who in April ruled in favour of Great Ormond Street and said Charlie should be allowed to die with dignity, to carry out a fresh analysis of their case.

Mr Justice Francis has considered the couple’s latest claims at preliminar­y hearings in the Family Division of the High Court in London. Last week Mr Justice Francis suggested that the American specialist — Michio Hirano — should travel to London to meet Great Ormond Street doctors and other clinicians.

Mr Justice Francis is due to oversee further court hearings in the next few days.

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