Cocooning is a ‘complete change of life’ says Miriam
AN Arklow councillor has spoken about her experience of cocooning and her concerns that the Covid-19 pandemic may introduce additional barriers for people with disabilities.
Councillor Miriam Murphy has been cocooning in her home in Arklow with her husband, Paul, for the last six weeks.
‘Cocooning meant a complete change of life. I thought it was only going to be for two weeks initially. But, when I heard it was going to be extended for three more weeks, I realised this isn’t going to be a quick fix.’
‘As someone with a disability, this put extra pressure on who you are in contact with and where you can go. I’m in good health and this [pandemic] has put me in an at risk category I don’t like to be in and I’ve found it hard to accept emotionally.
‘Listening to the news, I don’t think this is going to go away until we have a vaccine. Some lives will go back to normal but I’m afraid that mine will be very restrictive in the future.
‘As someone who has services coming into the house, the PAs (personal assistants) are coming with masks and gloves. I found that difficult though they were wearing them for our health and safety and their own. We do have great neighbours and family close by, but these girls devote their time to us and they are our lifeline.
‘While neighbours and friends can chat to us across the wall, the PAs have been our only normal human contact. It’s been very strange.’
A long-time activist and campaigner for people with disabilities, the Independent Arklow councillor has also been working with the Independent
Living Movement Ireland (ILMI). The organisation promotes a rights-based social model of disability and the removal of barriers that prevent the active participation of people with disabilities in society.
‘My involvement with ILMI has opened my eyes to what people are living with. People with mental health issues have also had their lives turned upside down by this and are facing more pressure.’
Cllr Murphy said she is concerned about the possibility of contracting the virus.
‘I love people and the fresh air, but I’m frightened. I’ve survived so much and am in good health, but I found myself thinking is this virus going to take me in a split second? Will the end of my life come within these four walls?’
Since the easing of restrictions last week, Cllr Murphy said she has left her home on several occasions, while following HSE advice as appropriate.
She has continued her work as a local public representative by email and phone, but said ‘not attending meetings is very difficult as someone who thrives on meeting with people’.
However, the experience has also provided an opportunity to learn new skills.
‘Zoom is great. IT brings a whole new world into people’s homes for teaching and keeping in touch with your family whether they are across the street or halfway round the world. It opens new worlds for the young and old.’
Miriam said she is particularly concerned about the impact of the virus on people who are housebound and that they continue to have access to appropriate supports.
‘It’s difficult for people who are housebound anyway, there’s more pressure now on who they can let into their homes. It’s good to know that organisations that offer support are continuing to help their members. They are unsung heroes.’
Miriam said she is staying positive despite the worry. On Saturday, she and her husband celebrated their 17th wedding anniversary.
‘How honoured and lucky am I to do work that I do? It keeps me going. I’m not going to let it [Covid-19] stop me now.’