Fi­nal count­down to cre­ate mem­o­ries

Central Leader - - LIFESTYLE & LEISURE - CA­TRIN OWEN

De­spite Iziyah Moe­mai’s med­i­cal con­di­tions, he’s one cool lit­tle dude who’s de­ter­mined to make the most of life.

Iziyah is 5 years old and was di­ag­nosed with chronic gran­u­lo­ma­tous disease (CGD) in Fe­bru­ary 2013.

CGD is an im­mune cell dis­or­der that leads to long-term and re­cur­rent in­fec­tions, he is also legally blind and only has lim­ited vi­sion in his left eye.

When he was only 2 years old Iziyah un­der­went a bone mar­row trans­plant and had a third of his lung re­moved.

Even though his vi­sion is quite sta­ble at the mo­ment, Iziyah will even­tu­ally lose it and his mum Dani Noyer wants to try cre­ate as many mem­o­ries as she can.

‘‘We don’t re­ally know the time­line,’’ she says.

Iziyah’s im­mune sys­tem is still very weak and is un­able to at­tend school.

Noyer is teach­ing him from home but hopes he can at­tend the Blind and Low Vi­sion Ed­u­ca­tion Net­work’s Ho­mai Cam­pus School in Ma­nurewa, Auck­land next year.

‘‘It would be pretty amaz­ing to get some sort of nor­mal but it’s still a big ques­tion mark be­cause of his health,’’ she says.

Noyer is try­ing to cre­ate as many vis­ual mem­o­ries for Iziyah as she can but says it’s a strug­gle when his im­mune sys­tem is so weak and ac­counts for a lot of plan­ning and prepa­ra­tion.

‘‘If we go to the su­per­mar­ket or any­where with a lot of peo­ple he wears a mask to help pro­tect him as you just don’t know what germs are around or what peo­ple are car­ry­ing,’’ she says.

While Iziyah has been in and out of Star­ship Chil­dren’s Hospi­tal he made a friend, Mad­di­son Giles, who is host­ing a mar­ket to raise money for him to cre­ate more mem­o­ries.

Maddi’s Mar­ket started in 2014 as she was un­der­go­ing treat­ment for acute lym­phoblas­tic leukaemia at the time. Maddi went into re­mis­sion at the start of 2016.

‘‘Mad­di­son de­cided she wanted to do it for her friend Iziyah, she said he needed to have a lit­tle fun in his life be­fore he goes blind,’’ mum Penny Hinchel­wood says.

Maddi’s Mar­ket will be held on Au­gust 13 for Iziyah at Ti­ti­rangi Bap­tist Church in West Auck­land from 11am till 2pm.

Search Iziyah’s In­trepid Jour­ney on Face­book to fol­low his jour­ney and for more in­for­ma­tion on the mar­ket.

PHOTO: SUP­PLIED

Iziyah Moe­mai (right) has CGD and is go­ing blind. He’s pic­tured with sis­ter Kaylee and mum Dani Noyer.

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