Herald on Sunday

‘I’m forced to use a bucket’

- Emma Russell

A75-year-old man battling a severe bowel injury asked ACC to fund a vehicle with toilet facilities, but was instead offered a bucket.

The man suffered the debilitati­ng affliction after a cancer treatment nearly five years ago and now lives in fear of leaving his house.

“I feel like a prisoner. I just want some freedom to go hunting and fishing and see my family and mates when I want,” said Norman, who didn’t want to use his full name for privacy reasons.

With the support of his surgeon and lawyer, the Northland man filed an ACC claim for a vehicle with bathroom facilities — but it has been declined twice.

Instead, in documents seen by the Herald on Sunday, ACC offered him a “suitable bucket with a lid”, which he can only use when he exits his car. “The assessor advised he was not there to look at transporta­tion options,” the ACC report added.

ACC also offered incontinen­ce products such as pads or pants but Norman said he found them uncomforta­ble and difficult to manage.

“He felt belittled and lost his dignity when he had to use ‘nappies’ and other similar products,” the report said.

“I’m being forced to use a bucket on the side of the road,” Norman said.

His advocates believe ACC’s response has been outrageous and wrong.

ACC lawyer John Miller said it was a criminal offence to urinate or defecate in a public place and a person could be fined up to $200 each time.

Miller said a van with toilet facilities might be seen as expensive but the aim of ACC was to encourage rehabilita­tion.

“If that involves a bit of expenditur­e then so be it,” Miller said. “It is no fault of his that he is in this condition; it’s not agerelated. This is in effect medical negligence that’s put him in this position.”

Norman’s medical records, seen by the Herald on Sunday, show his bowel injury — affecting his urgency and frequency to go to the toilet — was likely caused by radiation he had in 2015 to treat his prostate cancer, which has now been removed.

About four times a day he gets between 20 to 30 seconds warning before he needs to rush to a loo.

The injury, known as radiation procititis, has left him scared to leave his house and has dramatical­ly restricted time he can spend with whanau and friends — let alone doing the activities he loves like hunting and fishing.

He is unable to go anywhere without having a bucket and toiletries in case of urgent “bowel evacuation­s”.

“It gets you down a bit after a while. You’d think ACC would do the right thing but it’s like they can’t be bothered,” Norman claimed.

He said the impact the injury had had on his life was huge and he craved freedom.

“People were celebratin­g getting out of lockdown after two months, I’ve been in lockdown for nearly five years.”

Five of his six children live overseas so he hasn’t been able to see them since before his injury. He can’t go fishing anymore and travel is limited. “I just want my life back.”

An ACC spokespers­on acknowledg­ed this had been frustratin­g for the client but they never advised him to use a bucket on the side of the road.

“During an assessment carried out for ACC in May last year he told the assessor he was forced to use a bucket when driving for longer periods of time. The assessor discussed options with him, including using incontinen­ce pads, medication to help control bowel movements, and a portable commode.

“[He] declined these options and requested a vehicle equipped with toilet and washing facilities.”

They said Norman’s case was reviewed again in February and a number of options were suggested — including input from a dietician and specialist rehabilita­tion — but he rejected the support again, requesting a vehicle with toilet facilities.

“This request was declined because rehabilita­tion options were considered more appropriat­e and a vehicle of this type isn’t the normal means of managing faecal incontinen­ce,” the spokespers­on said.

 ??  ?? Norman feels like a prisoner, chained to a toilet at home, after ACC refused to fund a vehicle with suitable facilities.
Norman feels like a prisoner, chained to a toilet at home, after ACC refused to fund a vehicle with suitable facilities.

Newspapers in English

Newspapers from New Zealand