Pain can’t stop tod­dler’s fun

Kapi-Mana News - - FRONT PAGE - By KRIS DANDO

Flynn Brodie is go­ing to have a lot of pain in his life.

The Ti­tahi Bay tod­dler turns two on May 30 and has al­ready packed in hospi­tal vis­its and near-death ex­pe­ri­ences in his short life­time. He has pachy­ony­chia con­genita (PC), a non-con­ta­gious skin dis­or­der that af­fects just him in New Zealand and 1000 peo­ple around the world.

PC is caused by a change in one gene and fea­tures in­clude painful foot blis­ters, thick nails, a white film on the tongue and bumpy skin and cysts. There is no cure.

Com­bined with hav­ing haemophilia, the lit­tle guy has it tough, but par­ents Liam and Jo watch on as Flynn tears about like most twoyear-olds would.

Liam says he mar­vels at his ‘‘dap­per kid’’, who adores big sis­ter Isla but is go­ing to find it painful to walk, will never play sport and will likely need a wheel­chair when he’s older.

On June 2, at Ti­tahi Bay School from 9.30am till noon, the Brodies are hold­ing a ‘PC Aware­ness Day’. Funds raised will go to­wards cure re­search, with a spon­sor match­ing ev­ery dol­lar do­nated two to one. There will be a bouncy cas­tle, sausage siz­zle, cake stall, lolly scram­ble, face paint­ing and fire brigade visit.

To do­nate visit pachy­ony­chia.org.

A Right Royal Do, Satur­day, June 2, 10am till 4pm. Pa­rade at 10am from Plim­mer­ton Boat­ing Club to Plim­mer­ton Do­main via Steyne Ave. Wed­ding dresses on dis­play at St An­drew’s Church and Plim­mer­ton Pav­il­ion, gold coin do­na­tion.

Wed­ding belle:

Tight knit: Ti­tahi Bay’s Flynn Brodie, with mum Jo, dad Liam and sis­ter Isla.

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