Daily Trust Sunday

Why balance in science journalism can distort research, create bogus controvers­y and even contribute to deaths

- By John Illman Source: http://www.pressgazet­te. co.uk/

Balance is billed as the hallmark of good journalism, a fair way of telling both sides of a story, a means of being objective and preventing bias. The BBC Charter and editorial guidelines, for example, emphasise the importance of “due impartiali­ty”.

Balance can work well in straightfo­rward stories: a government minister and their shadow can be given equal time or space to state opposing views; a residents’ associatio­n can speak out against a radical council plan.

But balance in medical and science stories can distort research, generate bogus controvers­y and result in groundless fear and false hope. It can even contribute to deaths.

Remarkably, ‘balance’ is rarely discussed in public fora - and when it is, it is not because of scientific considerat­ions.

For example, Cabinet ministers were widely reported as insisting that the BBC “can’t be impartial” about terrorists”. Chris Grayling, leader of the Commons, insisted that the broadcaste­r should not seek to be any more balanced towards Isis than it was towards the Nazis.

This raises an intriguing question. Which stories/ topics merit balance and which do not?

Dr Edzard Ernst, formerly Britain’s first professor of complement­ary medicine at the University of Exeter, says: “Imagine that National Geographic were to publish an article ‘balancing’ existing scientific knowledge by presenting the opinions of the Flat Earth Society. Who would take it seriously? Yet we regularly accept the equivalent when discussing homeopathy.”

His point was that the scientific evidence against homeopathy is as robust as that stating the world is flat. There is no scientific rationale for assuming that homoeopath­ic remedies - which are devoid of pharmacolo­gically active molecules - can produce clinical effects.

The science in unequivoca­l. Any benefits of homoeopath­y must be restricted to placebo.

Yet if I were doing a piece about the science of homeopathy, convention would demand that I balance the story. A homeopath would probably steadfastl­y insist that science didn’t know everything and that he had hundreds if not thousands of satisfied patients.

In this all too familiar scenario a lone maverick may be given equal time or space as a heavily peerreview­ed researcher representi­ng internatio­nal scientific consensus. Such concession­s to mavericks create a misleading idea that there is an ongoing scientific debate between two ideas of equal weight. In this instance, as in many, there would be no debate to be had.

The quest for “balance” is incompatib­le in a world where there have been more advances in medical scientific knowledge in the last 50 years than in the previous 2,000 - since the era of Hippocrate­s.

We are living through a head-on collision between two of the biggest drivers in contempora­ry life - science and preoccupat­ion with risk. Previous generation­s did not ask, do cell/mobile phones cause cancer? Does living near high-voltage power lines threaten health? Should people take aspirin to avoid heart attacks? Should we vaccinate our children?

Such questions stimulate legitimate public debate, but they also foment scares that, in turn, discourage healthcare profession­als from working with the media.

Alas, sidesteppi­ng media questions for fear that they may exacerbate public alarm may have the opposite effect, opening up the ground to commercial interests who exploit fear for profit; and to pressure groups who disseminat­e misleading informatio­n.

Whereas pressure groups, such as the anti-vaccinatio­n lobby, are vociferous, many healthcare profession­als are the very opposite. This does not help in a world where the media may react to those who shout loudest. Rather, it encourages imbalance of the worst possible kind, resulting ironically from genuine attempts to achieve balance.

The MMR (measles, mumps, rubella) vaccine story is perhaps the most infamous example of journalist­ic imbalance. It began in 1998 with the publicatio­n in The Lancet medical journal of a later discredite­d report linking the vaccine to bowel disease and autism. Investigat­ions by Brian Deer of the Sunday Times later revealed that Dr Andrew Wakefield, the first author of The Lancet report, had undeclared conflicts of interest. In May 2010 the General Medical Council found Wakefield guilty of serious profession­al misconduct. He was struck off the Medical Register.

Wakefield’s widely reported claims led to a sharp fall in vaccinatio­n rates and a significan­t increase in incidence of measles and mumps, resulting in deaths and severe and permanent injuries. It is easy to see so many parents decided against vaccinatio­n. Ironically, because of the success of vaccinatio­n, few young parents will have seen a case of measles. Even fewer may know that it can lead to pneumonia, seizures and even inflammati­on of the brain.

This was another example of the media giving undue prominence to a lone maverick at the expense of scientific consensus. In 1998 Wakefield was genuine news. The Royal Free Hospital, where he was based, even called a press conference about his research. But he continued to make news even after his research had been discredite­d. The story just ran and ran.

In her book, Health, Risk and News: The MMR Vaccine and The Media, Tammy Boyce says that by 2002 the establishe­d practice in articles was for journalist­s to include both the idea that MMR was safe and that “it might not be safe”.

Yet in I998, after publicatio­n of the original Lancet report, a Medical Research Council working party concluded that there was no evidence to indicate any link between the vaccine and bowel disease or autism in children.

The following month a 14-year study by Finnish scientists reported that out of three million vaccinated children, 31 children had gastrointe­stinal side effects within 15 days. But their symptoms generally lasted more than a week, with the exception of one child who had diarrhoea for six weeks. In 2001 a London based study pooling all published MMR research also gave the vaccine the all clear.

What this suggests is that the media attach more importance to presenting both sides of a story, however implausibl­e one side may be, than accurately reporting scientific evidence. This led to a bizarre situation in which the Department of Health took what might have been an unpreceden­ted move. Rather than actively promoting the benefits of MMR, it kept below the media parapet, knowing that reporters would balance any Department press statement with a statement from Wakefield or the strident anti-MMR lobby. Their research showed that any coverage about MMR, good or bad, resulted in a decline in vaccinatio­n levels. This alone underlines why journalism needs to re-think balance.

Do we really want to provoke pseudo controvers­y and panic parents into denying their children life-saving interventi­ons? The MMR vaccine, like any other, is not risk-free, but the evidence that the benefits outweigh the risks is overwhelmi­ng.

Some scientists have maintained that the MMR story should not have been published at all. There is much to commend this idea because The Lancet finally retracted the original paper in 2010.

But if I had been a national newspaper medical correspond­ent in 1998, I would have covered it after all this was a report in one of the world’s leading medical journals based on research at one of the world’s leading teaching hospitals.

In deciding what to and what not to report journalist­s must continue to rely on news values such as novelty, universali­ty, topicality, impact and controvers­y. I have often reported stories haven’t we all - that I didn’t believe in and have relied, as far as possible, on balance to create a rounded picture. For example, I plead guilty to reporting unmitigate­d rubbish about Prince Charles and his belief in alternativ­e medicine.

I first questioned traditiona­l notions about balance while writing a piece for The Sunday Times. This showed that balance can also decimate non-scientific stories - in a totally different way. It was about a man who had set himself up as a Harley Street “psychother­apist” after running a marriage bureau and social club.

He was completely untrained, but within the law. Anyone in Britain could call themselves a psychother­apist (and still can) despite evidence that unqualifie­d practition­ers could cause significan­t harm. He claimed to be able to help people suffering from stress, tension and depression. He was even asked to deal with sexual problems.

Yet the “story” had to be balanced. I quoted him as saying that the mistake many psychiatri­sts made was that they “treated the field as 100 per cent science” when you needed “an intuitive feeling”. He added: “No exams, no degrees can show if you’ve got that or not. “The story was further “balanced” by legal advice, meaning that we had to describe him as “a reputable therapist”.

The following week he called to thank me. He said that he had been inundated by calls from new clients who had read about him in The Sunday Times. Balance had demolished my hatchet job.

Of course the right kind of journalist­ic balance is essential.

The late American astronomer and author Carl Sagan called upon science journalist­s to balance their genuine sense of wonder about apparently remarkable new developmen­ts with old-fashioned scepticism. This need is as great as ever.

In 1994, Professor Doug Altman, one of the world’s leading medical statistici­ans estimated that only one per cent of medical research was free from flaws.

In 2009 Sir Iain Chalmers, an internatio­nally acclaimed Oxford based researcher and his Australian colleague, Professor Paul Glasziou estimated as much as 85 per cent of research investment was wasted.

In 2014 a supplement in The Lancet medical journal raised similar concerns. But geewhiz science reporting eclipses scepticism.

Headlines such as “Cancer therapy offers hope” and “New drug breakthrou­gh for MS” sometimes make it hard to distinguis­h journalism from advertisin­g. Long live balance - of the Sagan kind. Reporters should also think more about weighting informatio­n than balancing it.

Illman is a former editor of GP who spent five years on the Daily Mail as medical correspond­ent.

 ??  ?? Andrew Wakefield, credit: Reuters
Andrew Wakefield, credit: Reuters

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