...Undergoes surgery so it can finally fit in her mouth

Ababy born with her tongue constantly poking out due to a rare genetic condition has undergone surgery so it can fit in her mouth.

Ocea Varney, 18 months, suffers from Beckwith Wiedemann Syndrome (BWS), a congential overgrowth disorder.

Even before she was born in Cairns, Australia, Ocea showed signs of BWS - which affects one in 13,700 newborns worldwide - with her tongue clearly visible on the ultrasound.

Despite some doctors assurances that the condition would sort itself out, her mother Melanie, 28, knew there was a more serious going on.

Doctors, nurses and even strangers told her not to worry as it looked ‘cute’, but Mrs Varney knew Ocea was bigger than her twin sister and her oversized tongue caused complications with feeding.

After Ocea was born, along with twin sister Indigo, nurses kept her in the neonatal intensive care unit for a week to monitor her low blood sugar levels – a sign which Mrs Varney later learned is a characteristic of BWS.

‘The moment I gave birth to Ocea I thought she looked different to my other kids,’ she said.

‘Obviously she had her tongue sticking out, but she was bigger than her sister.’

From Googling their daughters’ symptoms they came across another girl with a similar story who had been diagnosed with BWS.

Despite it being a common condition - affecting one in 13,700 babies worldwide - very few doctors knew about it.

The most common characteristics of BWS are a large body size, enlarged organs, and an enlarged tongue, which may interfere with breathing,