How the Yahaya Bellos Are Fighting Cerebral Palsy
In most African societies, children born with cerebral palsy are often victims of social stigmatization. Superstition holds it that these children are either descendants of the gods or children who have been offered by their parents for rituals or other nefarious spiritual purposes. For most of these children, it is easier for a camel to pass through the eye of a needle than to be admitted into any school just like other children. In many homes and neighbourhoods, they are separated from other children, treated with contempt and ridicule and eventually pushed to the fringes of society as outcasts. Indeed, it is a most gruelling and traumatic experience for these children, their parents and other loved ones, many of whom are now forced into a journey of hopelessness, having tried all means possible to find help, to no avail. Not for the Yahaya Bellos.
The story of Kogi State Governor, Yahaya Bello and his wife, Amina Oyiza Bello, a lawyer, is a remarkable tale of hope and resilience in the crusade to de-stigmatise cerebral palsy, educate people and bring hope and love to the children who are the most affected. The hand of fate dealt the Bellos an unkind blow in 2007 when what began as celebration with the birth of their son Hayatullah Onoruoyiza Bello was soon cut short upon discovery that their new bundle of joy was stricken with cerebral palsy. It was a pain too hard to bear. Defying the odds, they hit the ground running. From one hospital to another, from country to country and continent to continent, they travelled with Hayatullah in search of a resolution.
In the midst of this crisis, Hayat Foundation, a special intervention foundation that focuses on issues dealing with persons living with Cerebral Palsy and other Disabilities was born. The objective of the foundation is to bring succour, support and improvement to the lives of persons, children, parents and siblings alike, living with cerebral palsy and other disabilities. By this singular gesture, the Bellos have not only confronted their challenge headlong but also stretched out their arms to the less privileged in our society who may not be as lucky as their son. “Because I experienced and felt loved while I was growing up as a child, I became convinced that I have same responsibility to my son and therefore would not abandon him by hiding him in an obscure corner of the house where people will not see him”, Mrs Bello affirms.
Putting words to action, the Bellos will launch the Hayat Foundation on Friday October 13, 2017 in Abuja. Through this foundation, they hope to set up a Pan-African institute for children with special needs in the mould of the Kennedy Krieger Institute in Baltimore, Maryland, United States. Already, several well-meaning Nigerians have united behind this noble non-political, non-profit initiative. They include Toyin Saraki, Folorunso Alakija, Abah Folawiyo, Florence Ita-Giwa, Ben Murray-Bruce, Ademola Adeleke, Abike Dabiri, Mo Abudu, Sade Okoya, Laja Adedoyin, Daisy Danjuma, Osasu Igbinedion, Aisha Falode and Adesuwa Onyenokwe. Others are still calling in to support this humble and highly courageous lady who has refused to be cowed or intimidated into hiding her son from the public just because he is physically challenged.
I seriously salute her for this worthy project.. She needs our prayers and support.