THISDAY

De bola Daniel and the In convenient Truth

- Debola Daniel

Monday, the 2nd of April was marked globally as World Autism Awareness Day. Despite the millions of families who grapple with the challenge in our country, the day passed us by without much awareness. Meanwhile, the World Health Organisati­on (WHO) estimates that about one in 88 Nigerian children is on the autism spectrum. That means we have more than two million autistic children in the country; children who have been left without a future. I know many families who have had to relocate abroad to seek treatment and better living condition for their autistic children and countless others who live a miserable existence in Nigeria because they are helpless.

Unfortunat­ely, the problem is far deeper. As I have argued repeatedly on this page, the tragedy of Nigeria is not in government failure but rather in the failure of society. The former is merely a consequenc­e of the latter. And to that extent, until there is an attitudina­l change at the level of society, we are not likely to see much improvemen­t in the way we are governed. Today, we live in a country where to have any form of health challenge (be it mental or physical) is to be criminaliz­ed and dehumanize­d, no matter your status. Increasing­ly, we are becoming a without jungle considerat­ion where only the or compassion ‘fittest’ survive, for the weak and vulnerable. That was what Debola Daniel experience­d last week. But we know about his plight only because of who he is. Debola is son of Otunba Gbenga Daniel, a former Governor of Ogun State who is currently a Senator. But because of his physical disability, he suffered humiliatio­n at an eatery where he was known.

For those who may have missed the drama, the Federal Airports Authority of Nigeria (FAAN) last Thursday ordered the closure of the Kentucky Fried Chicken (KFC) outlet at the Murtala Muhammed Internatio­nal Airport (MMIA) in Lagos. This was after Debola narrated (on his social media page) how he was denied entry due to his use of a wheelchair. “Being disabled often rolls over my spirit, leaving behind a trail of shattered dignity and forgotten humanity. Nowhere more so than in Nigeria,” Debola lamented, while drawing attention to the prevalence and broader implicatio­ns of these discrimina­tory practices in our country. Professor What makes Ebenezer the Obadare case compelling, wrote in his as American Council on Foreign Relations blog on Monday, is that even for a status-obsessed society like ours, disability still trumps privilege. Because the KFC staff who dealt with Debola knew who he ‘IS’! Yet, they had the temerity to treat him the way they did, which shows the level of stigma attached to living with disabiliti­es in Nigeria.

Let’s take a few lines from Debola’s account of what transpired: “I arrived at the airport as normal for my Virgin Atlantic flight to London. familiar I’m with a frequent all due flyer processes and I’m at extremely Murtala Muhammed Airport. Years ago, after all security and immigratio­n formalitie­s have been completed, I would normally go to the OASIS lounge to wait for my flight. For the past out establishm­ents, of three service years, so sometimes I’ve the often lift to found the lounges, lounge solace sometimes has in other been restaurant­s. colossal mistake. Today I entered I chose the KFC restaurant – what with a four other travel companions consisting of my brothers and wife. The security personnel at KFC, Samuel, greeted me by name as I’ve been there multiple times. Just as we were about to sit, the lady at the till – who was apparently the manager – called out loudly, ‘NO WHEELCHAIR­S ALLOWED’. Our group paused in confusion, before my brother, Taiwo, asked what she meant. She refused to listen to reason and stood her ground that at @kfcnigeria Murtala Muhammed branch, wheelchair­s and wheelchair users of all shapes and sizes were not permitted in the premises and we should leave immediatel­y.” Debola then went on to narrate the various interventi­ons by people around him with the KFC management that failed to yield any positive result before he concluded on a philosophi­cal note: “It harkens back to dark periods in recent history. ’No wheelchair­s allowed’; ‘No coloureds allowed’; ‘No blacks allowed’…Today I felt less than human, like a guard dog not allowed into the house. Lonely and isolated…There are approximat­ely 27 million disability. Nigerians That’s over living 13% with of the some country...” form of I understand that the KFC management has apologised to Debola as demanded by FAAN but that does not mitigate the gravity of what happened. Or that it will not happen again elsewhere. Incidental­ly, in January last year, Debola had expressed a similar concern based on another discrimina­tory experience. “To be a disabled Nigerian is a lonely, scary, and isolated place. I have often struggled to articulate my Nigerian experience in a way people could understand,” Debola wrote while sharing the story of a concert he could not attend at the time. “There’s never a place for you. Not in the infrastruc­ture, not in social settings and increasing­ly not in society.”

What happened to Debola was not an isolated incident. It reflects the attitude of our society towards the physically challenged. In every area of life, people with one disability or another are discrimina­ted against and deprived of their rights. For instance, most hospitals, schools, places of worship etc. are not wheel-chair accessible across the country. In their 29 September 2020 paper, ‘Social inclusion of persons with disabiliti­es in Nigeria: Challenges and opportunit­ies’, two World Bank staff, Rosa Martinez and Valarakshm­i Vemuru, argued that when the attitudes of a community are negative towards a vulnerable group, they will struggle much more to realize their potential. “Persons with disabiliti­es in Nigeria persistent­ly face stigma, discrimina­tion, and barriers to accessing basic social services and economic opportunit­ies,” they wrote. Cosmos Okoli, an enterprisi­ng man who has proved that there is ability in disability once buttressed the same point: “We have had cases where some principals and head teachers refused admission to candidates not on the basis of incompeten­ce but for their disabiliti­es.”

When on 23 January 2019 President Muhammadu Buhari assented the Discrimina­tion against Persons with Disabiliti­es (Prohibitio­n) Act, there was excitement among stakeholde­rs. But, as we have seen over the years, the challenge is more about the attitude of Nigerians to the plights of this vulnerable group. It has little to do with the law. Even during the military era, we had the ‘Nigerians with Disability’ military decree of 1993 which provides “a clear and comprehens­ive legal protection and security for Nigerians with disability as well as establish standard for enforcemen­t of their rights and privileges.” That offered no protection to them and decades later, even under a democratic dispensati­on, nothing has changed. That the Federal Competitio­n and Consumer Protection Commission (FCCPC), FAAN and other agencies are responding after Debola recounted his experience at KFC is not because they care but rather because of his status.

Remarkably, one of the early reports released by Agora Policy, an Abuja-based think-tank spearheade­d by the former Nigeria Extractive Industry Transparen­cy Initiative (NEITI) Executive Secretary, Waziri Adio, was on ‘How to Deepen Social and Political Inclusion in Nigeria.’ The aspect on the plights of People with Disabiliti­es (PWDs) in Nigeria is quite revealing. “Many cultures and religions perceive disability as a curse or repercussi­on for wrongdoing. This explains why in many communitie­s, spiritual solutions are sought, a person with disability is isolated, sometimes hidden by their families out of ‘shame’’, the report stated. “Many PWDs, through their socialisat­ion, learn to self-stigmatise and isolate for fear of negative reactions and exclusion by their community members. Children with disabiliti­es are body shamed by their peers, girls and women with disabiliti­es are sexually violated and their complaints, when made, are often dismissed by law enforcemen­t agents.”

The tragedy is that we have a considerab­le population of PWDs in Nigeria. The World Bank reported that in 2018, about 29 million of the estimated population of 195 million Nigerians were living with a disability. “Data from the 2018 Nigeria Demographi­c and Health Survey reveal that an estimated 7 percent of household members above the age of five (as well as 9 percent of those 60 or older) have some level of difficulty in at least one functional domain, seeing, hearing, communicat­ion, cognition, walking, or self-care; and 1 percent either have a lot of difficulty or cannot function at all in at least one domain. These estimated rates, while significan­t, are probably even higher because current available data likely underestim­ate the prevalence,” the World Bank stated before the damning conclusion: “Findings indicate that persons with disabiliti­es lack access to basic services and that attitudina­l barriers represent a major impediment to their socioecono­mic inclusion. Inclusive policies are either non-existent, weak, or inadequate­ly implemente­d.”

As I stated earlier, whether it is physical or mental, there is little or no protection for people with such challenges in our country. Incidental­ly, until President Buhari signed the National Mental Health Act, 2021, legislatio­n in place for dealing with mental health was the Lunacy Act of 1958 which, even as the title suggests, is about stigmatisa­tion. That explains why across the country, you still find people with mental health chained and paraded the streets like animals. Clearly, Nigeria is not a compassion­ate society. I shudder to imagine what would have happened if the late Stephen Hawking, one of the greatest scientific thinkers of our generation, had been born a Nigerian!

Deliberate­ly, I shared the draft of this column with a close friend who has a special needs child. This was her response: “As you know, my daughter is neuro divergent. It has been a battle to get her educated in Nigeria. If I ever give up on this country it would be because I want to give her the fighting chance that Nigeria refuses to give her. Healthcare for her is literally costing me my life savings and the way this society treats us makes it so difficult to create normalcy for her outside the home. This is why many parents in Nigeria, including affluent parents, prefer to hide their challenged children at home and the less affluent ones abandon them to the streets when they are young adults. There is nowhere really for them to go because the society does little to try and accommodat­e our children.”

While we applaud Debola Daniel for speaking up, what happened to him is not unique. It is what millions of people with similar challenges face every day in our country. As my friend’s example illustrate­s, raising children who are neuro divergent is a difficult task in Nigeria. It is the same with those with physical challenges, as Debola Daniel’s experience also demonstrat­es. But it is beyond what government alone can resolve. What we must begin to deal with includes the exclusion, discrimina­tion, isolation, lack of empathy and frankly, the absence of thought in all facets of our society for the weak and vulnerable among us.

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