Grocott's Mail

Understand­ing rather than pity

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According to Disabled People of South Africa (DPSA) almost six million South Africans live with some form of disability.

We are compelled by this high figure to learn more about disabiliti­es, so we can support and help people with disabiliti­es in our community.

Something else to bear in mind is that disabiliti­es can be congenital/hereditary or acquired. Congenital/ hereditary means a person can be born with a disability or develop it due to genetic problems. Acquired means that any person who thinks they are otherwise healthy or normal can become disabled at any age due to factors like illness or accidents.

The National Council for Persons with Physical Disabiliti­es in South Africa state that “Persons with disabiliti­es include those who have long term physical, mental, intellectu­al or sensory impairment­s”.

Impairment is a “problem with a structure or organ of the body”. Disability is “the restrictio­n or lack of ability to perform an activity” due to an impairment.

In the scenario where a person lost a leg, one would say the loss of a leg is a physical impairment and the person has a walking disability. This is an example of a physical disability.

Mental impairment­s are mental or psychologi­cal disorders, for example depression, schizophre­nia and social anxiety disorder.

Intellectu­al impairment­s are disorders that limit a person’s reasoning, learning and problem-solving abilities.

Sensory impairment­s are problems with a person’s senses, i.e. sight, hearing, smell, touch, taste and spatial awareness.

These disability related terms are meant to be used in a medical context by medical profession­als to make diagnoses to help and support people with disabiliti­es. The rest of us should be cautious, because we often offend and hurt people when we use these terms loosely and incorrectl­y.

Maybe we should stop focusing on terminolog­y and remind ourselves that a person with a disability is a person, rather than a condition or diagnosis.

In the words of Sabah El Khouly, a young woman with a visual impairment: “What we must have is not pity but understand­ing, not custody but opportunit­y, not care but acceptance. Feeling sorry for someone doesn't help; it actually hurts. Expressing to someone that you feel sorry for them can easily reinforce self pity.”

This column provides an overview of impairment­s and disabiliti­es. You can contact your local doctor or mental health provider for more informatio­n or support. You can also contact Disabled People South Africa (DPSA) on tel. 021 422 0357 or online at www.dpsa.org.za.

• Nathan Ferreira is a practition­er in inclusive education and a proponent of inclusive communitie­s. disABILITI­ES is a monthly column. natjfer@yahoo.com

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